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Cuddles09

Newbie needing some advice, reassurance and a hug!

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Cuddles09

Hi Everyone, I am new here. I haven't het been diagnosed with MS although I am under investigations. Trying to keep a long story short (very hard lol!)... I am 26. When I was 15 I had glandular fever and never been well since. Three years after GF I was diagnosed with hashimotos thyroiditis. Around that time I started getting nerve pain in my right side (pelvis) that has got progressively worse ever since. 8.5 years on and its spread from my pelvis to pretty much my entire right side of my body ans still undiagnosedx I have nerve pain in my pelvis, groin, hips, bottom, leg, foot, face, head, arm and back - ALL right side. I am tired ALL THE TIME and I really mean all the time. I also have problems with both my bowel and bladder including going to the toilet to urinate about 5 times a night in average! I have lots of other weird and wonderful symptoms like tingling, feeling like my skin is crawling, that I don't want to be in my body because it's so uncomfortable, the list goes on. I finally wrote everything down and put it on a diagram. My gp has now refered me to the neurologist and wants me to have an MRI and brain scan. I'm very worried about having MS and what the future holds if it is. Does it sound like it could be MS/something related? I look forward to hearing from you all :-) xxx

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Nick

Hi Cuddles,

 

A difficult question to answer! A lot of people, including myself, go a long time before a firm diagnosis. The problem is that neurological conditions are complex to unravel and many symptoms can be similar in different conditions. In any event it's good news that you are going for an MRI. MRI's are one of the principle ways that neurologists discover changes in the brain. They use such information, along with other tests to arrive at an understanding of where your problems lie. It's a horrible time for you right now and many of us know just what that 'not knowing' feeling is like.

The more it is investigated for you, the more information you have, this understanding will help in a lot of ways.

Many people who don't have MS are very frightened by what the consequences may hold. The simple fact is that none of us really know ourselves just how the condition will effect us in the future. The term 'MS' covers a huge range of differing problems, yet many of the effects may never be experienced by individuals. So you should not dwell to long on thinking along those lines. Far better to listen to the neurologist and never be afraid to ask questions! A good bit of advice is always to list both symptoms and concerns as they occur and before your next visit to the specialist, make a short. condensed list to take along. In the meantime a big welcome here! There are some really knowledgeable people on the forum and also everyone here is here to help, with some folk in a similar position to yourself.

 

Nick


Just another Warrior...........

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Sleepy
Scully

Hello Cuddles,

 

Welcome to the MS People forums.

 

There are many complex issues, which means that there is no 'yes or no' answers for you I'm afraid.

 

The symptoms and history you describe could belong to hundreds of conditions, not just MS. MS isn't common by any stretch of the imagination. Symptoms you describe can be attributed from a simple vitamin deficiency, which can cause everything you've mentioned! Right through to mor complex conditions, with about w hundred conditions inbetween.

 

Diagnosis is not easy, even for experienced neurologists. Diagnosis can take many weeks or months, sometimes longer to arrive at. The reasons being as follows.

1. There is no single test to diagnose MS, even an MRI can't, on its own, lead to a diagnosis.

2. Many conditions overlap with MS, meaning neurologists sometimes have the laborious task or testing and ruling out many other conditions first,

 

So you can see why it can take many months in most cases, and after all that testing, it's more likely NOT to be MS after all.

 

Best advice is to try and remain calm, not dwell on any issues too deeply. And definitely don't start worrying about what the future may hold of it is MS.....chances are it won't be, and if it is, it isn't a death sentence, a vast majority of people cope very well with life as it was before!

 

Scully

 


They are not brain lesions..........they are just bright ideas

 

"The truth is out there"

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Mal

Hi Cuddles,

 

great advice above , i have nothing more to add , i just wanted to welcome

you to the forum .

 

Mal

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Tabbycat

Hi cuddles,

What ever they find it Ito best to know and start on the right med. there is lots of support out there. Don't be afraid. BIG HUGS!

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Lindylou

A big welcome from me. This forum is a great place to be. Try and stay positive!

 

Linda x

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