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Struggling with everything

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I am sorry to be a pain and to be asking for some advice/support. I have written on here a few times, but not for a while. It all started in 2012 (I think) , I had a week of bad headaches, then one day whilst on my way to work noticed one of my legs was very weak, couldn't walk properly, walk up or downstairs. I saw an out of hours gp who prescribed strong painkillers. As soon as my normal doctors was open saw a GP and they sent me straight to a&e. Once there had CT, blood tests etc. They did an urgent referal to a neurologist, long story short they found no issues, MRI came back normal. I also had a test where they measure electrical impulses from brain to hands/feet. Again all normal. So I was discharged, basically told no know cause and it will get better on its own.

 

Fast forward a bit, I started participating in sport again, playing football and running. I took up running and in space of a year I ran a number of 10k, half-marathons and I my first marathon. However the marathon didnt go as planned, physically I went to pot and walked-jogged for whole of last 13 miles. Not sure what was wrong. After the marathon (weeks after) I was really unwell physically, I could hardly stand at times, bad fatigue, blurred vision etc. I had to go private and was diagnosed with Fibromyalgia and given medication.

 

I then went from 16 hours of work to 39 hours and in a more responsible position. I have done 2 full months. However at the weekend I was at work and noticed that what happened to my leg two years ago had happened again, I felt really unwell, headache, plus I have shaking arms (this has been going on months) etc. I went to a&e who sent me to out of hours GP who said I need to see my own GP. Saw them and they have refered me back to neurology. I don't have a clue as to what is going on, out of hours GP just said that MS needs to be ruled out again, even though it was ruled out last time it may need to be ruled out again.

 

I haven't been at work this week apart from one day and I can't face going, aswell as feeling ill I am struggling with my mental health issues. I don't know what to do at all. I came of all benefits 2 months ago, so if I cut my hours (which work will not be happy about) I will be struggling. I cannot even face going in for shorter hours.

 

Just dont know what to do, feel all over the place.

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eliza

Well smile you dont feel like smiling at the moment. Listen to your body and dont start doing marathons or anything energetic, just gentle exercise. stretching etc. They will not label you with MS unless they are absolutely sure, have a look at a fibromyalgia site and treat yourself gently and as if you have fibro, eating well resting often, avoid stress and what I found good although I dont stick to it is going to bed at the same time everynight and getting up the same time every morning . No I have not got fibro, even though I have questioned it but a lot of my symptoms are like fibro. I was diagnosed 15 year ago and like many have had MS longer than diagnosis. Do make sure you keep going back to the medical people until you have every test there is and get a cause for your discomfort. (sorry discomfort sounds as if I am making light of it) Soon it will turn to discomfort but then do not race around like a mad hatter. relax........keep us in touch x

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