Jump to content
The MS PEOPLE UK Forum
Support, help, advice and information for Multiple Sclerosis. Ask questions and share experiences with people affected by MS.
lala

Dorsal column stimulation for pain relief

6 posts in this topic Last Reply

Recommended Posts

lala

Hi all

I get a lot of pain with my ms, have tried many drugs - gabapentin, amitriptyline, pregablin, duloxitine etc and nothing has helped. Finally convinced my neuro to refer me to a pain specialist back in September, and have an appointment in August.

 

Ive just received my copy of the referal letter and in it he suggests i may be a good candidate for a dorsal coloumn stimulator. Does anyone have any idea what this is? Im a bit scared to google it!

Any input on this would be appreciated, its freaked me out a bit!

Thank you

Laura x

Share this post


Link to post
Rama

Wish I could help Laura but I've never heard of it either. I was going to comment that I couldn't believe you had to wait almost a year for your appointment, but actually I can!!

 

Hopefully someone will come along with answers for you soon.

 

Gill x

  • Like 1

Share this post


Link to post
Procrastinating
Stumbler

I haven't heard of it before, but this webpage explains it :-

 

https://www.urmc.rochester.edu/neurosurgery/for-patients/treatments/dorsal-column-stimulation.aspx

 

:moonieman:

  • Like 1

John aka Stumbler (as I do fall over!)

Illegitimi non carborundum

 

"Life is not a journey to the grave with the intention of arriving safely in a pretty and well-preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming... "Wow! What a ride!"

Share this post


Link to post
Sluggish
Marina

With my various spinal problems which cause me intense pain, incl suggestion of surgery, I'd never heard of it either and my pain specialist of 10+ yrs has never suggested it to me, so I googled it too. I think if it were me, I'd definitely want to look into it further and maybe even get a 2nd opinion?

  • Like 1

Marina

(belated DX in June '05, SPMS)

Share this post


Link to post
lala

Thanks stumbler for the link, i ended up googling it and like you Marinia im not sold on the idea! Will do a bit more research but definitely think there has to be an alternative idea.

Appointment is on the 18th so will let you know how it goes.

Gill i thought 11 months of waiting was good for the nhs!

 

X

  • Like 2

Share this post


Link to post
lala

Hi all just an update...

 

Saw tge pain specialist on Tuesday, he straight away dismissed the neurologist's idea of a spinal stimulator! He said ot would only be considered in extreme cases! Gave me a new pill to try - nortriptyline and booked me in for physio and a trial if a TENS machine.

 

Fingers crossed something works!

 

Thanks for your help as always

Lxx

  • Like 2

Share this post


Link to post

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Similar Topics

    • Nerve pain

      Hi all,   Haven't been on for ages but wanted to ask about nerve pain, I came off plegridy during covid and have been ok until I acquired more numbness in my right torso and it is sore sometimes, I originally acquired numbness on my left torso in 1990 but with no pain, wanted to see if anyone has anything similar, the pain is primarily more noticeable when moving in a certain way, it might not even be that but thought I'd ask, I'm 55 yrs. Hope everyone is keeping the best that they can.   Cheers Stephen

      in General Discussion about MS

    • Pressure relief cushion

      Hello. I think I need one of these. Does anyone have any experience with them?

      in General Discussion about MS

    • Meds for neuropathic pain

      Just been reading some old threads on here about Gabapentin vs Pregabalin.   I've been on Gabapentin for 2 years and have put on a lot of weight, the Gabapentin is also good for helping with sleep and when I've left them off, I've found getting a good night's sleep impossible, leading me to think that I'm already dependent on them.  So my GP suggested switching to Pregabalin, however on reading up on them, it seems they are just as bad as Gabapentin for weight gain and becoming dependent.  I've tried Amitriptyline in the past for neuropathic pain, but am very sensitive to meds and they just make me feel awful.   Does anyone know of anything else I could try, or is it a choice between weight gain or being in pain and not able to sleep?    

      in General Discussion about MS

    • Leg pain

      Hi to all haven't been on here for a while, just been plodding on with life with a few hiccups along the way, i've been on  Gilenya for 6year's come April well taken alternative day's been ok till last few week's my leg's feel so heavy and hurt all the time, I have episode's of feeling like my leg's are cold inside so weird feeling, from the minute I get up I ache then when I stand pain in my leg's start  is this normal? this sight has alway's been great for  help xx

      in General Discussion about MS

    • Arm pain?

      Hi there, I have a symptom but I dont know if its ms related. My arms ache when trying to lift things. Even a cup of coffee or a book feel like a ton weight. Sometimes I just cant do it at all. I  walk up my stairs with the help of a bannister either side but last week the pain made me fearful of falling and my arms also felt weak. It gets better then worse.  

      in General Discussion about MS

About Us

Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.

If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.

The atmosphere is friendly whilst being compassionate, supportive and caring. Members also post about a variety of subjects not related to MS, as well as share jokes, talk about their hobbies, have fun, and more.


The MS People Forum is not responsible for advice or information supplied by members. We suggest you seek medical advice before trying anything.
×