Today I have been experiencing the feeling of local anaesthetic, the feeling you have when it is wearing off after the dentist.
It first appeared inside my nose on the right and is now also on the left hand side of my face!
I wonder if these will stay or not?
I received the neurologists letter earlier this week.
He clearly listened and understood me very well and relays that in the letter.
He says that I fulfil all the criteria for CFS. He says he is unsure if the pain etc would fall within the spectrum of Fibromyalgia but in view of the severity he would like me to be referred to rheumatologist to exclude a significant rheumatological condition.
He said there were inconsistent distal sensory changes to pinprick and temperature.
He says in view of the patchy, unilateral nature of the neurological symptoms he is referring me for an MRI of the brain.
He's recommending I try Duloxetine?
Any comments appreciated.
Generally though, I feel that at least I am being taken seriously and they are covering all areas.
When I saw the neuro he glanced over my symptom list for about a minute(I know they do not have much time per patient), and then he asked me could he keep it, so I said yes, I had another copy. And I thought no more of it. Anyway after having the NCS the next letter I was expecting was a new appointment. Imagine my surprise when the letter I got today was to let me know they could now offer me a neuroradiology appointment. The neuro never even mentioned MRIs at the appointment I had with him. So I am wondering if it was ordered after he had time to look at my list. Anyway I rang and I have MRI brain and spine on Saturday 25th August at 3pm. I have had MRIon brain before(which I was told no significant changes, whatever that means lol), but I am a bit nervous about the spine one and lying for so long as my lower back becomes very painful after about 5 minutes of lying flat. I can appreciate how much dx members on here have been through, but just wondered if you had any little gems of advice for me going into this.
sorry to go on xxxxx
I couldn't sleep at all night before last. This was swimming around in my head. I decided it needed to be written down. Someone told me you could help me get it out to the world. I can email the file if requested. Thank you!
Please allow me to introduce myself. My name is Multiple Sclerosis. I heard you're not afraid of me and not much of a believer in what I do. I was not happy to hear this. I thought a personal note from me would help you want to be my friend. Please try real hard to use your imagination now. It's going to be fun!
I'm going to need some tools to start this off. Let's start with my favourite baseball bat. Make sure we have the metal one now. We don't want it to break. Now stand still. I'm about to hit you in the ribs several times with all my might. What's that? A tear? Now stop it. We just got started. Way too early for that.
Okay. Now that we had a proper introduction, I'm going to take these ten bricks and place them on just one leg. I'll choose. Oh yes
I had to come of ESA because I have not enough contributions, so have been forced to look for work! Even though I was looking to find work a couple hours a day to get me out of the house and get my independance back financially.
I had an appointment with an advisor who signed me up, also filled a holiday form in as I went for a break to a friends as she was diagnosed with a tumour not quite a holiday it was to give her support for her hospital visit to have a lump checked out.
Anyway she referred me to a disability advisor on the 26th sept but before that had to sign on as normal until then!
I filled in my book , I was looking for retail as a check out operator as I wont be standing up for so long as my balance is not brilliant! Well this advisor looked at my book and said where is the jobs before such a date.I said I was away at a friends, she asked if I filled in a holiday form,Which I replied yes.She got up went away, came back with the form and said Oh yes you did..so obviously did not believe me. She said to me you did not look for work, I said no, I said it was not quite a holiday and told her why I was away. She said I will have to speak to my manager.
She said I had no filled enough jobs in, I explained I have multiple sclerosis so I am limited to what I can do and hours, I said I would work 4 hours a day if I can manage. I had already applied for asda but had a rejection email.
She typed on her computer and said I have found 4 other jobs including asda for the amount of hours you want.But it was retail like vodafone where you are standing when I looked they were 30 hours a week.I know there is no way on earth I would manage that no more, because of my fatigue and my balance. She then told me that my jobseekers might be stopped. I came out of the job center in tears, my husband picked me up and I could not even speak to him.
Now today I went to the jobcentre with my daughter as she is signing on too. Now my daughter she has just started a voluntary job working in a charity shop twice a week, to gain experience so she can work in retail, as she has applied to somany jobs and been for interviews but been refused as she had no experience, her book is full of jobs she applied to, and by golly she see the same woman as I did and she told her to go downstairs, so she went downstairs to see someone else, and the person said do you know why you are here, my daughter said yes thinking it was because she would have to fill in a form for working in a charity shop, she said because the advisor upstairs has said she feels she is not doing enough!! The woman said I can see you have been looking but your money may be stopped if there is a doubt...When I toldmy daughter she see the same woman as I see she sagreed she is a bully!!!!! I am dreading going to sign on, on the 19th I feel sick to the stomache,
Sorry for the rant!! I decided tomorrow I will the disability advisor tomorrow and ask if I can see her sooner
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