“The government has announced that people with MS in the UK will be eligible for one of two new treatments if they catch COVID-19. Currently, treatments are only available for people already in hospital.”
MS and COVID-19: Two new treatments available from mid-December
WWW.MSSOCIETY.ORG.UK
Find out about new COVID-19 treatments for people with MS.
Hi all.
My perimenopause has now been chugging along for twelve miserable years. It's not fair. I've had depression (thyroid tick), palpitations, breast cysts, low thoughts, super dry skin (thyroid tick), yellow thick skin on my feet (thyroid tick), super heavy menses (thyroid tick) and my hair is falling out approx twice as fast as it used to (thyroid tick), weight gain (thyroid tick) and severe sleep disturbance but also all of these things bar the very dry skin type perfectly well for a lack of fertility hormones, so I'm being tested for that too. And anaemia for the super heavy menses, I must be losing a few pints a month, no kidding.
There is a link between hypothyroidism and MS I know. Is there a blood marker for MS related to the thyroid?
Today i decided to give bupa a ring and explained about my problem with the constant migraine. It started 3 weeks after my cover did but I didn't go to the doctor until a month after that. The NHS nuro said it was part of the CFS but I am not convinced. I never had this problem before. I have never experienced anything like it in my life. My body is telling me something has changed and I dont know what it is. I explained to the bupa represenative that I have had headaches and migraines before but never experienced a pain like this and also told him that the NHS nuro put it down to CFS but it is still going on a month later. I said I could find nothing on the net that suggests that constant migraine like this is due to CFS. He said it doesnt sound like a usual part of it and authorised me to have the apointment and MRI. I am thrilled that I got the authorisation even though one Nuro has already put it down to CFS. You cant lump everything on that!
The gabapentin has done wonders for my head and all I am feeling right now is a background pain and a little bit of burning. Compared to what I have gone through its nothing!
I can not wait until my apointment on monday. I am hoping he will not put it down to CFS so I can have my MRI quick sharpish. If he does I will have probably have to pay the full cost of the apointment and wait for my NHS MRI which hasnt been booked yet! But I already had the money ready for the apontment anyway so it wont be so bad. I never expected Bupa to cover it. I did mention that my husband has saved them money by being too lazy to sort a private apointment to break down his kidney stones which he is covered for. He never did get round to going to the doc for a referal and his NHS apointment is only 2 weeks away now!
I know there is something wrong with my body, I can feel it. I can't explain it but I know something has changed this year.
Hi all, quick update from me, I got my steroids on Monday, Tues n Wed next week! Bit of a bummer that its a 3 hour round trip but I'd go twice as far if needed cos I'm desparate now.
The ms nurse said that after the steroids they will refer me to a more local hospital so it'll be easier then.
The neuro told me that the steroids will help speed up the recovery of this relapse which is great, but I've got it in mind now that this is it for me cos its been goin on since May. Pretty scared really, I'm gettin weaker every day now and constant pain in me legs which never lets up one little bit.
Not bein very clear am I! For those who don't know me I was diagnosed a fortnight ago after gradually worsening problems since May. Have in the past had optic neuritis, numb feet, unexplained falls etc but its always gone away and never once has any GP suspected MS til it all started up again in May and since then its got worse and worse.
I guess I'm worryin now that the steroids won't work??? I haven't had a chat with an MS nurse yet and I am totally in the dark in regard to RRMS, PPMS, I don't know what it all means and don't know how to spot which I've got?
Can anyone give me an idea of their experiences with steroid treatments etc??
Incidentally I'm bankin on this workin cos my house is in such a mess n I don't mean a bit of dust, I mean completely upside down, no surface is clear and clothes just don't get put away anymore. I can't change the beds n my kids are livin on chicken nuggets n waffles! Oh and I got turned down for DLA on the basis that, get this, I CAN walk 200metres, at a REGULAR pace and in a NORMAL manner. Just wish they'd seen me drag me right leg through town the other day when I had to go get Calpol for my 3 kids full of cold. Arses. (the DWP, not my kids LOL) and wish they'd seen my tears when I poured scoldin hot fat out of the roasties tray over my hand when I dared to try make a sunday dinner, that one got me scrikin I tell ya.
Would be very gratefully for a bit of light shed on all this!
Em X
I am really worried about my appointment Monday, I have waited 13weeks for this and initially only requested a referral because of uncertaintanty about the cause of my face pain. Since that time, over 3 months, the TN pain has been excruciating at times and I have started to acknowledge the other things going on with my body. The stabbing in my feet and arms and hands, restless legs, leg feeling wierd etc.
I do however, tend to get a few weeks where I feel generally ok, used to be a few months but not anymore. SODS LAW, it is now that I am feeling ok and yet I was on the phone begging for an earlier appoint ment 3 weeks or so ago.
I am really worries I am not going to get things across well because I am not feeling totally depressed and fed up and in despair like I am often.
Sorry to drone on!
Katie
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