Hi guys,
I am currently on ocrevus treatment after having a fair few relapses over recent years and I cope well with it. But I find around 3 weeks before treatment is due, I suffer from "old symptoms" of MS which are normally controlled well. I'm really struggling with leg pain and fatigue, which were the symptoms I struggled with the most when I was first diagnosed in 2024. Does anyone else find this happens to them?
Hi all, if you were refused PIP by DWP and have not appealed i urge you to do so as MS is a life changing disease.
I applied June 2019 then appealed, last year Oct following my face to face assessment Sept. This was refused, i then appealed by Tribunal which took place July 2020 via telephone. A Doctor, Judge and a representative from DWP asked questions based on the what was reported up until the date of assessment (sept 2019) they did not want to hear about now.
Anyway, this was not a scary experience. In fact it was easier than the DWP assessment, they wanted to hear how the RRMS impacts on my day to day life.
The decision was upheld and i was awared PIP standard rate.
4x 2 points awared and 4 points awared fot mobility. Interestingly DWP scored me ZERO in all areas!!! I will be back dated from june 2019 and entitled to PIP until june 2022.
Be brave, fear nothing and make sure you stand up for MS by claming what you are entitled to. Do not be put off by a Tribunal. My opinion is DWP have no idea what they are assessing with MS, lack understanding to the hidden yet highly self limiting symptoms that do not fit nicely into their generalised tick box questions. DWP are likely to score people with ZERO like me, dont be put off... appeal with a smile! Surely living with MS is far harder than anything a Tribunal can throw at you. Good luck all.
Hi all you lovely people.
I've been reading on a few forums for quite a while but been to scared to join or ask any questions.
Please feel free to tell me if I'm doing anything wrong I'm not at all good with technology !
In 2017 I started to experience numbness in my right leg and foot and my face .
The feeling in my face returned within a few weeks but unfortunately Its not been the case with my leg and foot.
My foot feels rubbery and you could quite literally stick needles through my toes without me feeling anything .
This obviously has a impact on my walking and affects my balance quite alot.
I've experienced vision problems , mainly blurring but the most recent ,last year losing the colour red .
I experience bladder and bowel problems and extreme tiredness.
I've had a lumbar puncture which was clear .
My MRI showed 4 lesions but the other one they do , is it spine or something ?! was clear of lesions .
After a few appointments with a neurologist ( 2 ) she diagnosed probable MS .
When I asked about treatment I was told No as I dont have MS and do not fit criteria.
I've not seen a neurologist since but have had more symptoms .
when I've been taken to hospital for other things Drs have looked in my notes and said I have MS .
I'm so confused.
Id to ask for treatment but need my facts right first .
Oh also vital point 18 years ago I had quite a big incident with my sight , I needed to have my baby early because of this .
I had an MRI of my head where they found a few lesions .There was talk then of MS but I was young and didnt like what they were saying so never went back .
I'm so sorry for the stupidly long message.
I would just like to know , would it be reasonable for me to ask for treatment?
I dont want to deteriorate any more .
Hi all. I see new treatment for spinal injury, a method of allowing the brain to move limbs. Optimistically this may help people with ms.
Best wishes
Peter
Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.
If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.
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