I was diagnosed with RRMS in 2014.
Until the last 6 months, I have been coming down with fever so bad it puts me in bed for days and nights. I'm taking Aubagio 14mg daily. It's really starting to change my life. My gp is useless and does not listen. Neither does my ms nurse . Nothing gets investigated and I feel so let down.
Here’s an explanation about heat sensitivity and raised body temperature in MS.
Heat – Multiple Sclerosis Research Blog
My thoughts are for our readers with MS who are having to live through and cope with the latest heatwave. The BBC has just reported that this is the hottest late August bank holiday on...
I must admit that I didn’t stop to think that the heat of this weekend is why I’ve been saying my vision seems blurrier than usual! Doh..!
I hope no one minds me joining and posting here. I don't have a diagnosis of MS but I have a long and tedious list of random symptoms. I feel I'm being fobbed off by my GP who seems to think I'm either a hypochondriac or depressed. I don't think I'm either. I know some of the following are normal for a 45 year old working mum, but I'm listing everything to give a full picture...
Stomach issues and weight loss
Twitching muscles / nerves and jerking fingers
Sore, burning patches of skin (shoulder / armpit and thighs)
Weird numb, weak feeling in left forearm
Stiff, weak hands
Blurred vision at times
Lower back pain
Random pins and needles
Poor memory and concentration
Dizziness / feeling spaced out
I've had various tests and the only things that have come up are B12 deficiency (not pernicious anaemia), positive ANA and a hiatus hernia. GP says that none of these are likely to be causing my symptoms. I experienced a sudden earlyish menopause a few years ago but HRT hasn't helped me feel better. GP is reluctant to treat B12 as tests for PA were negative, despite me eating a good diet and taking supplements at the time.
The burning skin, finger jerking and weird feeling in my arm are new symptoms over the past couple of months and are what has led me here.
I know nobody here can diagnose me of course. I just wonder whether my GP should be doing more. They don't seem remotely interested to be honest.
Despite years of attacks, multiple symptoms, MRI of brain showing lesions coming and going and involvement of the corpus callosum, I still cant get a diagnosis of MS from my neurologist - or a diagnosis of any kind! Needless to say I'm pretty frustrated. Do patients in the UK have similar problems obtaining a diagnosis? I live in a very isolated part of Ontario, Canada hundreds of miles away from a 'second opinion' so when a patient has only one neurologist serving a huge area, well....Any comment will be greatly appreciated. Thank you.
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