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Mazza

Back pain

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Mazza

I am looking to hear from any fellow "monster" sufferers who experience back pain. I hope to find out what different ways MS affects people regarding pain in their back and upper thighs.

I have recently been experiencing severe pain in my lower back and sometimes in the top of my legs. I am unsure if this is down to my MS or something completely unrelated

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Nick

Hi Mazza,

 

A very good question, one that I have trouble answering myself. Yesterday I ran out of pregabilin which I take for MS pain relief. Now normally I am not to concerned if I miss a day as my feeling is that this is a slow release drug that needs build up to be effective. However I am now finding that it may be time (reluctantly) to increase the dose as I can quickly experience pains , particular in the legs and back. Yet the question remains, just how to you differentiate between 'MS pain' and 'other' when it comes to these particular kinds of symptoms. At 60 I am no spring chicken and have every reason to believe that my very active younger life may simply be catching up with me. I simply don't know! Monsters I suppose would be full of this kind of cunning confusion just to try and fool you.

 

Anyway I hope that is of some help and hope the pain eases off soon.

 

Nick

  • Like 2

Just another Warrior...........

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ptlike

Hi Mazza

 

I used to get pain in the back but I've swopped ferrules for flexi foot ones, they seem to give some cushioning on the crîtches. Re leg pain, yes I get that too but in my case due to spasms caused by ms.

 

Best wishes

Peter

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Lindylou

Hi Mazza,

I get a lot of back pain and I also get sciatica as well which goes down my legs. I did mention it to a GP sometime ago and she said that back pain and sciatica is quite common in ms sufferers. Mine comes and goes, I can go long periods pain free then it comes back without any warning. It's back at the moment and I am getting a lot of sharp pains in my lower back and pain in my legs.

I also get a lot of pain in my upper spine especially first thing in the morning and evening I am pretty sure this is ms related as well. I'm on pregabalin which I think does help a bit but I still get a lot of neuropathic pain.

Hope you're pain eases soon.

Best wishes

Linda x

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Sleepy
Scully

Hello.

 

I suffer with a lot of pain in the thoracic spine, upper back. I often radiates to my arms and I'm sure sometimes kicks off the dreaded MS hug...it's the one part of the spine that has no movement, unlike the cervical ( neck area) or the lumbar spine ( lower back).

 

I take pregabalin which does help a lot with the pain. But I find that if I've been driving, knitting or reading, for too long it really aches.

 

I've got one of those heat things that go on the microwave, it like a long sausage shape, which I can drape across my shoulders. For me, the heat helps.

 

Scully

 


They are not brain lesions..........they are just bright ideas

 

"The truth is out there"

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Crappy
Marina

I'm coming in a bit late to this, sorry..!

 

I have several back/spine issues, which are separate to MS, including lumbar spinal stenosis and cervical spondylitis. Whereas they're not caused by MS, my pain specialist said the stenosis can exacerbate some MS symptoms (eg, thigh pain) and vice versa. It can be very difficult at times to tell the wood from the trees... Unfortunately, no med helps my pain. I've had several cortisone shots into my spine but the effect, if any, only last a few days.

 

That said, from time to time, I've had a couple of occasions where I've had really excrutiating acute back pain, whether lumbar or thoracic, on waking, where I've had to grab onto walls or other furniture to get about. It would improve within a couple of hours of getting up. And would be gone after a few days or a week or so. I never quite knew what those incidents were about, but I'm guessing they were more MS related, especially as my spinal pains tends to be in/from the lumbar or cervical area and not the thoracic.

 

On one occasion, before my DX, I woke up with intense pain in my legs. It was so bad, I even phoned emergency doctor, but they didn't know what it was and said to give it another day. I couldn't move my legs in bed without yelling, and when I could eventually get up I could barely walk for two days, then it went but I still had painful calves that felt hard; I was given Baclofen for that, which helped a lot and I still take it. This mysterious leg pain was later attributed to MS.

 

The MS Trust has a page describing pain in MS, including musculoskeletal pain, which comes as a result of posture changes in people with MS, due to various other symptoms:

https://www.mstrust.org.uk/a-z/pain

  • Like 1

Marina

(belated DX in June '05, SPMS)

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