Just thought you would all be interested in this
Self-diagnosed COVID-19 in people with multiple sclerosis: a community-based cohort of the UK MS Register
JNNP.BMJ.COM
In the early phases of the UK COVID-19 outbreak, in the absence of clear evidence about the risks for people with multiple sclerosis (pwMS) and those taking immunomodulatory disease-modifying therapies (DMT), we launched a...
The Trajectories of Outcome in Neurological Conditions (TONiC) study is one of the largest ever quality of life studies for people with neurological conditions in the UK. It will identify factors that affect quality of life in conditions such as Multiple Sclerosis (MS) and Motor Neurone Disease (MND) and will develop disease-specific models showing how these factors interact.
If you are cared for by MS Nurses in the following areas :-
Brighton
Cumbria
Leeds
Liverpool
Oxford
Preston
Salford / Manchester
Sheffield
Southampton
you may be able to contribute to this research.
More details here :- https://tonic.thewaltoncentre.nhs.uk/
Came across this interesting snippet.
Now to my mind the study does not involve anywhere near enough subjects, but what caught my eye is that they we trialling D2. I has always understood that D3 was perhaps the most beneficial.
Anyone else come across this before?
http://www.abc.net.au/science/articles/2011/10/25/3347640.htm
Hi Folks,
Another study dismiss the CCSVI link with MS
http://www.msrc.co.uk/index.cfm/fuseaction/show/pageid/2944
In summary it was a blinded study ( the people conducting the exam didn't know if the subject had MS or was "normal") and about 50% of MS and 40% of "normal" subjects had anomalies with their venous systems. No subject showed evidence of reflux.
It would be good if at least one study backed the theory up. All the studies that I am aware off, that have been done so far seem to be consistent with these findings.
I would like someone to explain the increased well being of those that have had the procedure which surely goes beyond the placebo effect. Were they suffering MS in the first place ?
Andy
Some of you may already know that I recently travelled to Papworth Hospital to undergo a Sleep Study.
I have copied and pasted the post that I wrote to fellow mods and admin. I am just too shattered to write it all again
Regards
Michelle
Hi Guys,
I'm back and totally cream crackered. The sleep study itself was very interesting. I felt it was a form of torture If you're not keen on anything wrapped around your throat overnight, then don't bother having one. I would imagine it would freak you out. I certainly wasn't expecting two lots of fine tubes inserted into my nostrils,or being told to keep my eyes shut, and try to sleep for 20minutes during the course of three day time tests. By the time Andrew picked me up at 4pm ,I didn't know whether I was coming or going .
Still, I got to recieve my results there and then. And it's official, I have CFS. I was also told, that even though I sleep for long periods of time, my brain is still very active.Oh, and I snore I kind of knew that The doctor in charge told me that sleeping during the daytime is really bad for me,and rather than going to bed I must sit near a window,or go outside. This conjured up visions of old folk sitting by their care home windows eagerly awaiting a visit from their family. These results will now be passed to my neuro,and the CFS specilaist that I have been seeing for the last 6months.
Will probably post this on the board,just to save me writing again.
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