Hi I have had various health problems over the past 8 years. (Migraines, cluster and thunder clap headaches). last few years have hands cramping, tiredness, muscle pain, burning lower legs and few, severe feet and legs cramps, tightness in lower rib cage, feeling cold water running in ankles/legs, spot of vibrating in thigh. I thought I might have fibromyalgia. GP has now referred me to neurologist to 'rule out ms'. My sister and cousin both have ms. I am not afraid I just would like a diagnosis but know it can take years. Can anyone please advise if my symptoms are more fibro or ms? Thank you.
I've recently received a letter from one of local hospitals which I had my brain and full spine MRI done at saying basically I'm on a waiting list and to wait for a call or letter with an appointment that see the neurologist . Unsure wether this letter came from my gp or the private neurologist I've already seen I rang the hospital yesterday and Apparently it came from my gp and the referral was made on the 13th sept. I was then told to be patient as the waiting time was 14 weeks for an appointment. ( I had my MRI done 3 weeks ago now) I then received a call from the hospital this morning for an appointment on the 4th oct as next week it's a nurse ran clinic only.im confused as to why it's gone from 14 weeks to 2? Could it be a bad sign ?? I've recently started having different things going on with my body so I'm glad it's not too long away though so I can mention it.
Hi I'm being referred to a neurologist from my gp as she seems lost now as to what is wrong and after a chat today she suspects it's ms.
For 12 weeks now I've had tingling in my lower half with numbness/wet feeling in my knees but over the last 6 weeks ish it is now in my arms and face. I've been on every pain relief going and nothing is stopping it plus With my vision it's as if I'm in a trance all the time and with some new tabs I feel drunk . I've had neck and lumbar X-rays and an bloods done for nearly everything and they were all fine. I've had over 4 weeks ago a lumbar mri and still waiting for results but the doc has said today if I had a herniated dics I would of heard back by now so she has to think of what step to take next. She said for a while she has thought it has been early ms signs but didn't want to worry me. She now is going to see if I need to go for a brain mri before seeing a neurologist as I could be waiting months for an appointment.
I'm scared but unsure what to think at the moment.
These seem to be my main symptoms,
Tingling all over
Get pins and needles very easily
Feels like Sciatic pain mainly right leg
Vision seems like I'm in a trance
Sometimes feel very woozy
Go light headed quite abit
Ringing in ears(tinnitus)
Left Eye twitch on and off
Slight hand tremors but worse in the morning
Stiffness in my lower back
I do get rather low in myself quite abit but would not say depressed and I can't handle any kind of stress, I seem to loose my temper very quickly.
Any kind of advice would be appreciated. Thanks
I'm a type one diabetic with other autoimmune diseases, so I was reluctant to go to my doctor with the numbness because I was concerned she would say it's diabetes related. But it isn't.
When I was about 19 they found an abnormality on my brain. They called it a mass on my forth ventricle, but no follow up was done on it and it was about the same time I got diagnosed with diabetes, so that took priority.
I've been being seen by rheumatology who tell me I have joint hypermobility, but that doesn't explain the weakness I feel and the numbness.
About 6 or 7 years ago I was diagnosed with trigenimal neuralgia. My doctor believes this to be a potential sign of MS.
I had an appointment with her today and she has decided to refer me to neurology.
So, just really wanted to know what to expect.
Hi My name is Emma and I am 37. I have 3 children. I have been diagnosed with Fibro since 2004 and Ehlers Danlos since 2013. I have had severe symptoms, starting with double/cloudy vision since April 2014, progressing with pins and needles, numbness, bladder weakness, memory loss, falling over, and other things. getting worse, then going away and then coming back again worse.
I went to the eye emergency clinic in 2014, and was told I need to see a neurologist and they would write to the GP and ask for me to be referred. Long story short the old GP said they did not receive this and I eventually have become house bound due to the symptoms.
Before Xmas 2015 I got a copy of my medical records and there is a letter from the eye hospital to the GP asking for further investigations, I have changed GP hoping for a new start. I went there today which took a lot of effort, to be told it can take 4 weeks maybe more for medical records to come over, I have to go back next week for numerous blood tests, I now can be waiting weeks, with double vision, eye pain and the pins needles etc again.
I am looking to go the one of the hospital neurologists privately, then ask them to see meon their NHS clinic for tests/scans etc? Has anyone had experience of that?. I can afford the consultation, and maybe some tests, but I think the MRIs would be very expensive.
Or should i go to a opticians or a and e to ask to be referred, as its so hard to cope with these symptoms. Or is it only a GP that can refer to a neurologist?.
any help you can give me would be much appreciated,
Thank you Emma.
Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.
If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.
The atmosphere is friendly whilst being compassionate, supportive and caring. Members also post about a variety of subjects not related to MS, as well as share jokes, talk about their hobbies, have fun, and more.
The MS People Forum is not responsible for advice or information supplied by members. We suggest you seek medical advice before trying anything.