Hello helpful people on this everso useful website, i have a question, a many fold quesion, M.S was confrmed in my life (by phone) at the begining of the year, my earliest appointmnt to see some one to ask any questions is end of may(so over 4 months from that phone call) The problem is i am a temp nanny, so i move all around the world, luckally i have been in the same poistion (on and off) for the last year so have had all my appointments at the same hospital and had to change to a local GP near work, I am also lucky as the lady i work for has a close GP friend with MS, so i have been able to have the odd question put to her, she thinks due to the symptoms i present i will be ellagable for disease modifying drugs (bad sensory symptoms, lots of tingling, and my reaction to pain is not there, i can watch the boiling water go up my hand and have to think to move my hand rather than a reflex, my poor hands are suffereing terribly, with cuts and burns,)
my poosition is up here mid june, My research indicates that the first month of drugs is moniterd, (but i dont have a month) so the question is if i can go private sooner is it worth it to have the time to be monitered. Which brings me to my next question i am planning on spending 4 months in a van over the summer in france (house hunting-Im actually homeless at the mo) then oct i will be back at this job, then spending the winter in Asia travelling before settling down this time next year, So IF i'm ellagable for drugs AND manage to get an early appointment privately are any of the drugs suitable for travelling in a van in france or indeed taking backpacking round Asia (on a shoe string so not sterrile hotels) ? And if not, and all drugs have to be in a fridge what do people do for holidays? Although if a drug can help the development of the MS thats good but im not going to re write my life because i have MS, if i dont go traveling now, because of drugs, maybe i will not be able to do it again because of MS,
Hi All,
Me again. Just a quick question. Is there any place where you can buy ice packs and thermal bags when you are travelling with injections? We've lost ours somewhere!!
Thanks a lot,
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