Hi all,
Haven't been on for ages but wanted to ask about nerve pain, I came off plegridy during covid and have been ok until I acquired more numbness in my right torso and it is sore sometimes, I originally acquired numbness on my left torso in 1990 but with no pain, wanted to see if anyone has anything similar, the pain is primarily more noticeable when moving in a certain way, it might not even be that but thought I'd ask, I'm 55 yrs.
Hope everyone is keeping the best that they can.
Cheers Stephen
Just been reading some old threads on here about Gabapentin vs Pregabalin.
I've been on Gabapentin for 2 years and have put on a lot of weight, the Gabapentin is also good for helping with sleep and when I've left them off, I've found getting a good night's sleep impossible, leading me to think that I'm already dependent on them. So my GP suggested switching to Pregabalin, however on reading up on them, it seems they are just as bad as Gabapentin for weight gain and becoming dependent. I've tried Amitriptyline in the past for neuropathic pain, but am very sensitive to meds and they just make me feel awful.
Does anyone know of anything else I could try, or is it a choice between weight gain or being in pain and not able to sleep?
Hi to all haven't been on here for a while, just been plodding on with life with a few hiccups along the way, i've been on Gilenya for 6year's come April well taken alternative day's been ok till last few week's my leg's feel so heavy and hurt all the time, I have episode's of feeling like my leg's are cold inside so weird feeling, from the minute I get up I ache then when I stand pain in my leg's start is this normal? this sight has alway's been great for help xx
Hi there, I have a symptom but I dont know if its ms related. My arms ache when trying to lift things. Even a cup of coffee or a book feel like a ton weight. Sometimes I just cant do it at all.
I walk up my stairs with the help of a bannister either side but last week the pain made me fearful of falling and my arms also felt weak. It gets better then worse.
Hi my name is Moray and I have had Ms for 10 years as I was misdiagnosed, and since being diagnosed three years ago with MS, I have been given many forms of drugs, none have helped since the side effects were awful, Copaxone injections, Painkillers, Antidepressant's. At the moment I am taking nothing as the doctors don't seem to know how to help anymore. I am disabled and rely on 24 hour care and in constant pain and very depressed. I rely on my partner for everything including help on the computer as my hands and arms are numb and painful, #I even find it difficult to use my mobile.
I don't know where to turn anymore and am so depressed and in pain, Can anybody help or advise.
I am a very positive person and have fought cancer but this has me beaten.
Blessings
Moray
Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.
If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.
The atmosphere is friendly whilst being compassionate, supportive and caring. Members also post about a variety of subjects not related to MS, as well as share jokes, talk about their hobbies, have fun, and more.
The MS People Forum is not responsible for advice or information supplied by members. We suggest you seek medical advice before trying anything.
