Hello all,
I really did not want to be posting here and as I write you hopefully understand why.
About 2 months ago I noticed my right eye was getting faded vision, like reading a letter where the printer was running out of ink. I would say dull, faded, grey? but 100% NOT blurred...
Each day I get up its fine, I get ready for work, shower etc... and then I notice it. It is mostly like it all day but possibly comes and goes.
There is no pain, but almost a feeling of pressure, but very light.
Here is the weird part...
If I goto the gym, or take my dog for walks it gets worse, just as if I run or rush around.
But...
If I go out and have a beer or two, not as in drunk but just relaxed it goes perfectly back to normal!
Also if I lay down and rest, or relax a bit it goes away, and seems to go back to normal at night no matter what I am doing.
After a few doctor visits, a lots of tests as hospital eye clinic, there is nothing wrong. So further questions to doctor and waiting ages I am lucky enough to have taken out health care, so went to private hospital, saw an eye/nuro specialist who did more tests, all fine, so he asked me to go for a 20 minute jog/run and sure enough came back and results on tests were different.
Had an MRI scan and it showed inflammation of a nerve, on further conversation with doctor he used the phrase I did not want to hear...Demyelination of a nerve in the Centra Nervous System.
He has referred me to a Nurologist to speak more but in the mean time I can only but worry.
I have to state that my Dad has MS, and sure enough when younger lost vision in one eye totallty, it came back though, and then 30 years later he has muscle wastage in one leg, started in the last few years.
Appreicatation and thanks to anyone who has read this far...
I am just after some advice, help, or anything on what I should do?
As I understand they do not name it until there are a few different episodes linked together?
I have no idea if connected but my right hand can occasionally feel a little weak when pouring a kettle, and my right leg can occasionally feel, hmmm cold or a little achey, but only if I have been busy like this morning kneeling down painting and bending about which I dont usually do, this could be just as I havent used these muscles etc.... but you cant help but worry.
My doctor did say try not to connect the symptoms and at one point said the eye thing could be a vascular but now not so sure.
Does any of this sound familar to anyone?
He did mention there are steroids which can reduce or even reverse the imflammation.
Is there anything I can do as tests or eat to help or anything?
Sorry a bit all over the place but any information would be helply.
Many thanks in advance.
Dave
Reading a letter in Take a Break, a lady who has MS said that she took part in a sponsered bike ride from London to Paris. She managed 70 miles to Dover and completed the rest by train after advise that she may risk a relapse.
My question is this...........how many people here manage to exercise.... ie cycling or running etc.......and how far / how long ?
Personally, I'm unable to walk very far, let alone exercise, but I am interested if anyone else can. I used to swim, but found that the pool was too cold for me as my temperature control is very poor.
Thank you.xx
Hi, yesterday I thought i'd go for a short bike ride. However my body had different ideas.
After a short distance my energy was just gone, I didn't even have the strength walk with the bike. I had to phone my OH to collect me in the car.
I did however discover that my left leg is no way as strong as my right, yet I've always had most of the sysmptoms in my right leg.
I cannot believe how slurred my speech had become, I just couldn't speak. I made no sense at all.
Is this what I can expect if I try to exercise in the future ?
[Mods Note - Topic title changed to be more descriptive as "Please read me", which is the only thing people see in the forum indexes doesn't let people know what the actual topic is about. Thanks]
Hi Everyone,
I am a student studying Product Design at Leeds Unviversity. My father has MS and has been the inspiration for my third year project. I am looking into fitness/exercise equipment specifically for MS patients.
I would be very grateful for any thoughts, suggestions or opinions you would like to offer around the topic of exercising and keeping fit with MS. All comments are welcome.
Thank you.
Sarah
Breathe in slowly for a count of 7...then breathe out slowly for a count of 11. Repeat until your heart rate slows down, and things start to feel normal.
Oh! And something I have learnt over the years...avoid folk who stress you out
Michelle
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