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Paigep

Young people with ms

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Paigep

Hi I'm new to the forum. I'm wondering if there is anyone of the younger generation out there that has ms. I'm 17 and have had ms for 3 years now and I've never come across with anyone my age and I'd love to be able to talk to someone that can relate

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Nick

Hi Paige,

 

Welcome to the forum. It has been very quiet here just now but we do have a big age range. I'm pretty ancient by the way! Anyway there are lots of groups around with younger people. This one may be useful to you. https://shift.ms Marina who is the brains behind this site also has a brilliant directory of information on all things 'MS' http://ms-people.com/forum/links/

 

You are doing exactly the right thing by reaching out to other people with similar problems. Knowing that you are not alone and gaining a better insight by talking to other people will be a really big help.

 

Nick


Edited by Nick

Just another Warrior...........

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Great Dane

Hi Paige

 

Welcome to the forum. I do not know where you live, but there is a young MS group which meets in Oxfordshire. I shall attach the link

 

https://www.mssociety.org.uk/near-me/branches/west-oxfordshire-branch/young-ms-group

 

in case you live near this area.

 

Hope you find someone to share your experiences with.

 

Great Dane x

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Sleepy
Scully

Hello Paige,

 

Definitely try and seek out your local MS Society Group, most areas have them. Your MS Nurse would certainly know how to contact one.

 

If you click on this link https://www.mssociety.org.uk/near-me then enter your postcode it should locate your local group. Give the local group a call or an email?

 

Fingers crossed you will find a local group. It's important for you to be able to talk to others in the same position.

 

Although, thus far we have all been really old people!, You can always offload, rant, or ask some advice....we were all your age once!

 

Scully

 

 


They are not brain lesions..........they are just bright ideas

 

"The truth is out there"

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SuperNovaKorn

Hi. Im 27 and started having symptoms about mid 20s. Ive been investigated for over a year and it looks like i have Primary Progressive MS. Just like you I would love to chat and meet younger generation. Where ever I go to find out about more about MS, people are 45+ which makes me feel a bit uncomfortable.

 

If anyone know please let us know of any young people society who suffer from MS or similar neurological condition.

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Nick

You are not alone on this problem. Many young people get fed up with MS groups with older people. In our area we tried to overcome this problem and the result was that a separate group formed with the emphasise on socialising rather than constant "MS talk'. Unfortunatly I don't know about your area in this regard. Somebody here may have more information. My only suggestion is to try the MS Shift website for more local contacts and keep asking that 'older crowd' I'm almost certain that there will be a more informal group locally.

 

Good luck from an ancient Nick


Just another Warrior...........

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Jennaxoxox

I'm a lot older than you but still feel too young for this. I turned 30 in July and was diagnosed in November. I know how you feel the only people I know that have this condition my mother cares for and I only know about them because of her. Given that I've told you my mother is a career it's clear these people are old, very old and I've never met anyone face to face that has it. I would love to meet someone the same. :-( that's definitely part of the problem with this condition is the feeling of being cut off/different from everyone else. I have rrms. Oh and my names Jenna :-)

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Nick

Get in touch with a local group may well help...............it helped me enormously!

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Just another Warrior...........

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