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Softsqueezy

Neuro physio

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Softsqueezy

Hi,

 

has anyone had neuro physio? I can't seem to find a single post about it...just wondered what peoples experiences of it were? did it help? I've recently started it and it seems to be making me considerabley worse...all across my upper back is agony and my 'walking' is nothing but a very slow shuffle now...I'm inclined to give up on it.

 

Fran x

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Nick

Hi Fran,

 

I do have 6 monthly visits to a neuro physio and have found it helpful. I think it's one of those things that is so difficult to quantify. For a start it will depend if you have confidence in that person. Then there is the question of is it the treatment or is it the MS affecting you. I feel sure that a regime of the correct exercise helps me, however my walking ability is constantly changing, some days bad, some days good. My main source of getting planned exercise is a weekly seated exercise group. The far less frequent visits to the real professionals have provided me with the likes of a foot splint and other walking aids and also keep meon the radar so to speak.

 

Nick


Just another Warrior...........

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Sleepy
Scully

Hello Fran,

 

I've had a neuro-physio for years. It's at my local hospital, neurological-physio's are normally located in the hospital RE-has department. Your GP ought to be able to track one down for you. These specialist physio's concentrate only on patients who have a neurologist issue, so a regular physio isn't much use.

 

I've found them a tremendous help, not only in excercing, but, more importantly, teaching me how to excercise in the correct way, so as not to injure or strain the rest of me. They can always supply aids, such as walking trolleys, etc.

 

I normally have a six week course every six months or so.

 

 

There have been discussions about neuro-physio's and the benefits here in the past, I'll try to seek some out for you.

 

Scully

 

 


They are not brain lesions..........they are just bright ideas

 

"The truth is out there"

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Softsqueezy

Hi,

 

many thanks Nick and Scully for your replies : )

 

I attend my local hospital for the Neuro physio..I think you hit the nail on the head for me Nick when you said 'For a start it will depend if you have confidence in that person' to be honest I have zero confidence in the person bending me into shapes..she seems to be miles away while I'm trying my best and ending up hurting myself..I hurt my back so badly I couldn't take my asthma inhalors next day..breathing in was excrutiating..so my asthma got bad then : (

 

I see my MS nurse on Thursday I will have a word with her and explain that I end up wrecked next day after every session.

 

Thanks again guys

 

Fran

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Sluggish
Marina

Hi Fran

 

Sorry if I'm a bit late here... Years ago, when I was first DX'd, I saw a neuro physio (NHS). Like you, I had an awful experience with her. Firstly, when she was trying to assess my walking speed, she counted out loud so fast that it made me try to walk as fast as she was counting, which was way too fast for me. Then, having told her I have spinal stenosis and couldn't lie on my stomach because of it as it's too painful, she insisted I lie on my stomach to test something or other and kept meon my stomach for ages. There was more but I no longer remember what. I walked out of there limping and in agony. Apart from that, I couldn't see advantage or help from that visit. Needless to say, I didn't go to see her again.

 

I was then sent to normal physio for my MS (again NHS). That was a waste of time too. All they did was an assessment then told me to go home and do a few exercises and come back in 6 months time. I felt this was insufficient and inadequate.

 

My pain specialist (private) then sent me to a neuro physio in the private hospital (on private insurance). This was a complete opposite experience of the NHS neuro physio. I went for several weeks, whilst we went through various exercises and pool things, and whist she watched my every move to check I was doing it properly. She also told me to start using a stick and measured the one I already had and said it needed to be made shorter, and gave me advice on how to use it.

 

I guess it's a matter of luck as to whether you fall on a good or not-so-good neuro physio, whether NHS or privately.

 

I think it's a good idea to have a chat with your MS nurse about it. Good luck!


Marina

(belated DX in June '05, SPMS)

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ptlike

Neuro physios are they same as normal physios but are insured to treat neurological problems in my opinion.

I guess if your back aches exercise is designed to strengthen aching parts.

Physio did help me slightly but you need to be doing every day and hands up I'm too lazy lol.

If your prepared to be patient I think you will benefit but you will need to continue exercise.

Are you there twister champ in your house?

Best wishes Peter

 

 

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