I saw the neuro today and he did some tests while I was there and has pretty much ruled out MS.
I have to go for brain MRI to be sure but then a rheumatologist and a psycologist.
Feel a bit numb, stunned and confused, don't know much about these and what happens next.
My neuro appointment has finally come around. My biggest concern is not being taken seriously as I know many of you have had to go back numerous times. I was also not really taken seriously when I saw the neuro 5 years ago.
Hope everyone`s coping with the hot weather.
I saw my neuro June last year, first visit for 12 years, my notes had gone missing so he started from scratch and sent me for an mri and said he wanted to see me yearly. He also said I had spms.
I didn`t get an appointment come through for June this year, so the other day I phoned the ms nurse`s office to see if they could find out what was going on.They were very helpful, gave me results of mri, but with regards to the neuro appointment she said that the neuro had probably changed his mind!
I was gobsmacked! Thanks for letting me know! Is this a normal thing that is happening now?
I feel angry, confused and very disappointed, it just seems very strange to me. Has anyone else had the same happen?
I wish you all we'll and hope you can help me... I am waiting for a neurology appointment as we speak because for the past 3 years I have been getting some really awful symptoms, have been back and forward to dr's and rheumatologist and pain clinic for really painful legs and feet. Constantly aching and feet feel like I am walking on stones al the time, even when I am not on them. Having also been getting twitching feeling on the bottom lid of right eye. I have also had aching arms and wrists and muscle jerks/spasms in my right leg. Blurry vision and tired dry gritty eyes. I know will probably all be fed up of newbies asking these sort of questions but I just would like to know what this is? My dr is suggesting MS. I have had numerous tests, MRI, EMG, echo and ECG as I also have had the occasional palpitations too, I am keeping a symptom diary/journal to take to neuro with me , I am glad to be being taken seriously now as have been fobbed of so many times before, all test and bloods have come back normal and negative. Does this sound like MS to any of you? Thank you in anticipation.
I've had MS for approx 12yrs and have been on the Dr Roy Swank Diet (plant based since I'm a vegan). This diet is AMAZING wish I had done it sooner! Back on topic, I requested to have prescription written for LDN (low dose naltrexone) but my neuro refused to wrtie it!!
This is disgusting IMO. I now have to find a GP and have him write it or another neuro to write it .I am done taking these highly toxic MS drugs and am doing the Dr Roy Swank or Dr John Dougall diet and wish to get on LDN ASAP!!!
Anyhone else have such a neuro that refuses to write LDN? This is totally unacceptbale and higly upsetting.
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