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johnH

PPMS

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johnH

I have PPMS and for some reason I only get Gabapentine, I would be interested to hear about other treatments available (Scotland) and I have read very good reports on ocrelizumab (spelling) is it available on the NHS?

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Nick

Hi John and welcome to the forum, its pretty quiet here just now but loads of people out there. Lots of press reports about this new drug.

https://www.mstrust.org.uk/a-z/ocrelizumab

Not yet available for the NHS. Best place to find out about other treatments for you is via the MS Nurse or Neurologist. In theory we should all have MS guidelines from NICE. https://pathways.nice.org.uk/pathways/multiple-sclerosis

these should allow us easy access to these services. In practice some people find they are rather off the radar. If you are off the radar use the local services map from the MS Trust to contact your nearest MS Nurse. https://www.mstrust.org.uk/understanding-ms/who-can-help/map-ms-services

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Just another Warrior...........

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