anyone else felt this way

[flappyfeet]

my d day is monday getting nervous

well I've had all the tests and the results are back, lesions found in my spine and inflammation in my spinal fluid according to the letters ive been sent so far, I see the neurologist again Monday to hopefully find out what's wrong with me, I've gone from walking loads each day to wheelchair/sticks and stair lifts in less than a year, I am looking forward to finding out what's wrong with me "hopefully" but extremely nervous at the same time, I keep telling myself a diagnosis isn't gonna change what I am living with daily but it makes it seem so real and ive kinda been burying my head in sand that once they know what's wrong they can fix me, did any of you feel the same apprehension to finding out

[Stumbler]

Whether you're expecting it or not, getting a diagnosis can still hit you like a freight train!

 

Go to this appointment armed with any questions that you may have about what happens now, etc. And, do go accompanied, as the formal diagnosis may just interfere with your coherent thinking. Two sets of ears are better than one.

 

Having a formal diagnosis will return some order to your life. You can not start discussing potential treatments to help you manage this condition. You should also be introduced to an MS Nurse, if not introduced already, who will become your primary contact for all things MS. They're very specialised, only dealing with MS patients and are a gateway to all manner of complementary services, e.g. physio.

 

This is not the end of your life, but the start of the rest of your life. Just be patient with yourself whilst you consume all this new knowledge. It may take you some time, so go easy on yourself.

 

This can be a very stressful time. And this stress can be a contributory factor in making your MS worse. This aspect is discussed in this 30 minute webinar, which may be worth watching, http://eventcenter.commpartners.com/se/Meetings/Playback.aspx?meeting.id=718605

 

Edited 18 Feb 2017, 6:54 am by Stumbler

[derby42]

Hi there, I was dx nearly 6 years ago and it hit me very hard. I had a baby of 2 months old and another one of one year old. I took to my bed for months. Like you, I walked excercised worked socialised a lot but I went downhill very quickly then it was wheelchairs scooters I lost my job and at the time I gave up. For a long time I got so very depressed, if I didnt have my kids I wouldve taken my life.

Now I'm in a MUCH better place. John talks a lot of sense, if it is a dx you dont want you have to change your perspective and not sit and wait for a magic pill. Live your life and get out of it ALL that it offers. Please don't be like me and waste years xx