Need support

[Wells.angela]

Hi I'm Ange and I'm 40 years old I've been suffering with chronic pins needles and numbness down my left side for almost a year I've also had very bad bouts of vertigo and balance issues along with a tremor of left arm and lately my left leg has been giving way, I've also had a bout of losing bladder control .... I'm under care of neurologist who has said my MRI showed white matter lessons but our inconclusive and I'm awaiting lumbar puncture and evoked potential test, I'm off work due to the balance problems, please has any one else been going threw this or can you tell me if you think this is MS I'm in limbo at min and have no other help from health care professionals, just a ton of meds from my GP to try mask my symptom,any advice would be greatly appreciated as I feel like a total nag.

[Skippysprite]

Hi Ange

 

Sorry to hear you are going through this, limbo land is awful, but it is only a neuro that can diagnose ms. If your appointments are a long way off, try ringing and asking to be put on the cancellation list, you never know it could help you get an earlier one.

 

Ms is notoriously difficult to diagnose, as lots of easily fixed problems mimic ms, so it may be something like that, but even if it does turn out to be ms, it is not the end of the world, believe me, it is still a very worthwhile life just by making adjustments.

 

Hang in there, we all understand how frustrating this is, and we will listen if you need to vent, or offer advice where we can.

 

Take one day at a time, don't check out Dr. Google, listen to your body and be kind to yourself, take care.

 

Pam x

[Nick]

Hi Ange,

 

Plenty of folk here to help, its a difficult time not knowing , something we have all be through. As Pam says, listen to your body and re-prioritise what is important, DONT try and do too much at this stage, in other words try try try to take it easy.......difficult I know but it's important.

[Wells.angela]

Thank you both for the reply I'm sure my husband thinks I'm crazy at times .... I've finally got a date for the evoked potential test still waiting on lumbar puncture such a long slow process but again thank you for the advice, much appreciated.

[Nick]

One of my memories from the point at which you are now at, was that somehow I expected things to be resolved swiftly. This is not however how it works, and there are good reasons for that. For a start anything to do with neurology is complicated and there are often no simple answers. The Brain and spine are immensely complex, in fact they are the most complex things in the entire universe! Neurology itself is a vast subject in which neurologists tend to specialise. They need time to build up a picture and using all these marvellous techniques such as MRI's and various tests and procedures can sometimes come to a reasonable conclusion swiftly, again however it is also the case that a specific condition can take longer.

Another point about all this is that getting a diagnosis is a bit like tying a label on something (or someone) it only tells you a name. In the case of the 'name' Multiple Sclerosis' that really tells you very little. MS covers a big subject, and as we have often said on here, we are all different, and in many ways all affected to a differing degree. So don't be too scared of things.

Anyway do keep posting, I'm sure you will find it useful.

 

Nick