This is the question on my mind. Is it on yours or could you help me answer it?
I am awaiting a second neuro opinion but have been diagnosed with FND. My symptoms all fit with what I have read about MS and the only reason I didn't get that diagnosis was because my MRI was 'within normal limit'. However, recently my mobility has become affected.
I regularly have to walk a fair distance during term time and out with the family the other day, I was hobbling along a familiar route. I love walking but now with dizziness, Chronic Fatigue and involuntary movements (myoclonic jerks) especially of my hips, causing a pelvic ..um...thrust, a sudden tip to my right and occassional split-second knee buckling, walking has become frought with the worry of falling. I have a stick and it does help, but my legs feel heavy and slow after about half a mile.
So, I've been finding out about how to choose a wheelchair to use outdoors,part time and have begun to use courtesy chairs at large shops. It makes such a difference, taking away the anxiety of tripping or falling and leaves me with more energy.
I'm awaiting a physio referral, as well as neuro appointment and CFS therapy but I'd rather not have to wait to get a chair. I've even found one that suits my needs and I like and can afford (I'd rather buy than rent).
What do you think? Any advice appreciated. I'm fed up of being 'wobbly slow-coach mummy' and feeling anxious about something I used to love.
it is looking very likely that i will be a perment wheelchair user.iam trying to take the bull by the horns,i fancy doing a wheelchair sport,been looking into wheelchair badminton,i enjoyed it at school.it seems that as i live on the isle of wight there is no wheel chair sports at all !!! not intrested in fishing !!! any ideas ? suggestions ? thanks in advance xx
Hi Everyone,
Well I had my first experience of a wheelchair this weekend so I thought I would share it with you.
I am still able to walk short distances with the aid of a stick. However two of my friends were taking me away this weekend - we were going to Boat of Garten and were hoping to spend a day at the nearby Highland Wildlife Park. I have been there about 5 years ago and was aware of how much walking is involved. I knew I would never manage it so decided to hire a wheelchair for the weekend.
First big hurdle was purely a physiological one - getting my head round the fact that I actually needed one. But that's another story!
We got the chair out at the Wildlife Park and my friends took turns pushing me. Every time we got to a slight incline, or some rough terrain I would exclaim "I'll just walk this bit!" My friends had to keep assuring me that they were quite capable of pushing me. There were a few sections where it was impossible to push me in the chair. So I got out and walked these sections. But it was good to have the chair so I could then rest for a bit. I actually surprised myself a couple of times at how far I actually walked before needing to get back in the chair.
Thoroughly enjoyed my day - saw polar bears, tiger cubs, red pandas, wolverines, snow monkeys and many more animals. Wouldn't have managed it all on my own two feet.
Wheelchair has gone back today. I'm not yet at the stage where I need a wheelchair of my own - but it's good to know I can get one for any trips where a lot of walking is involved.
Better stop wittering on now as I have an appointment at the physio in an hour!!
Gill x
Hi everyone, my fiance has secondary progressive MS, he was diagnosed with relapsing remitting MS is 2003, and diagnosed last august with secondary progressive. This is when I met him and in the last year my lovely fiance has sadly lost most mobility and is effectively quadriplegic now. Any way he is spending most of his time in bed due to the immense agony he feels in his wheelchair and rising recliner...or anywhere really. But I have just found out about Standing Wheelchairs, from what I can see The Genie is the most affordable and is suited for all wheelchair bound people right accross the scale to 'severely paralysed'. obviously the health benefits of standing up and moving about are huge and my fiance will get some independence back.
Has anyone got a standing wheelchair or knows if its worth it?
thanks :)
Hello All,
Probably one for the ladies here, but a lady who has MS and is wheelchair bound has an exclusive online site for clothing designed for those who have mobility issues, and problems with zips and buttons.
The article was carried by the BBC here.
http://www.bbc.co.uk/news/business-18058636
Scully
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