Hi all,
Despite that rather gloomy topic title, I am not actually posting this full of the woes of the world. Just wanted to say "hi" & that I am so relieved to find this site.
I was first told that neurologist suspected MS when 7 months pregnant, about to become a single mum. Not the most cheerful time in the world for me, as you can probably guess. A very pleasant young doctor chatted to me about how his wife was due at the same time as me, mentioned MS to me for the first time, told me to "hope for the best & prepare for the worst" and sent me waddling off on my own, with no more information or support to cry my heart out in the car park. That was in 2001 & I seriously hope that diagnoses are now following the NICE guidelines a bit more closely. After an 18 month wait for an MRI, the official confirmation in 2003 was something of a relief. Even if the neuro was not any better than the last. "You already have one chronic condition, (long story), now you have two." Close the door on your way out....
Since then I have been living with the "ups and downs" of it, as we all do. Raising my son has been a lovely distraction and rather than making my life more difficult, he brings me so much joy that I would take on any horrible things that life wants to throw at me if I have him with me.
The reason I am turning to you all is that, I am SO grateful that my MS is not even worse than it is, that I feel to guilty to talk about & dare I say, have the odd moan about my symptoms. My friends are great but they just can't really understand. (Possibly 'cos I am not too coherrent about the symptoms, to be honest!!). Saying that i had a bad night because of "allsorts"(pain, twitching, aching, numbness, over-tiredness etc) doesn't really help them to "get it".
Can't really cope with it all anymore without being able to share with others who understand.
Gosh that actually did sound quite gloomy, after all!! Hope to share lots of jokes, laughs and stories as well as the bad stuff.
Take care,
KingGeorgia
Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.
If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.
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