Hi all,
My wife was diagnosed with MS over 10 years ago.
She has been on medication for the condition for quite a few years, since being on the injections she has not relapsed and shows no symptoms at all.
We did inform the DVLA when she was first diagnosed by sending them a letter. However, that’s the last thing we did and didn’t hear anything back from them.
Last week we were sorting out some clutter and came across my wife’s paper licence and discovered it still has her maiden name displayed. So we decided to collect and fill out a form for a new photo licence to change to her married name.
One of the items on the form asks is you have any medical condition that may affect your driving, one of them is MS.
So I started reading up and discovered if you have MS your licence must be renewed every 3 years after filling out a medical form. If this is the case it seems that the DVLA did not receive the initial letter informing them of the condition as wife still has old paper licence.
My wife’s condition does not affect her driving ability in the slightest. However, we are now worried if we inform them we will be fined up to a £1000.
My question is has anyone that you know of been fined for not informing them immediately when the condition was diagnosed?
Thanks in advance
Hi everyone.
Signed up back in March, but not introduced myself properly yet.
Had first sudden onset of symptoms way back in 2003 (Aged 35) which affected my ability to hold down a full time job. Had to give it up due to cognitive problems, clumsiness, numbness, tingling, muscle twitching in various parts of my body, altered sensations, temperature sensitivity, headaches, pain in left shoulder, right hip/groin and fatigue along with other problems. I had lost weight and was suffering from nausea and dizziness. I also noticed my right shoulder was dropped and I'd lost my feminine wiggle according to my partner when I walked. I think this was because of stiffness/rigidity in hip area.
I believe I had my first brain MRI in 2004, my memory doesn't serve me that well and my medical records read like a novel since then. I also saw a neurologist at the time. I saw the specialist for the results of the scan and about the only thing she said to me was, "You do not have MS" that was basically it. I remember waiting outside the consultant's room with the muscles in my back jumping and twitching that much they were physically moving me in my chair. I was also suffering with drop foot, headaches, along with other symptoms at the time.
I pretty much had an awful time over the next few years, I was back and forth to GP with numerous problems. I also have pigment dispersion syndrome and have to see an eye specialist.
I think it was 2006 I was given a diagnosis of PTSD, fibromyalgia, Chronic Fatigue Syndrome, depression and anxiety and had CBT therapy. This all came about after I was laid up for around a week, when just simply opening an ironing board, my back went and I literally couldn't move without screaming the house down due to a back spasm. Days spent in bed, having to crawl to the bathroom if I needed a pee as my partner at the time left me to my own devices as he had to carry on working, I don't think he or anyone else ever believed I was really ill. Given god awful meds for pain relief which left me spaced out (tramadol and naproxen) both of which I didn't tolerate very well, they are now off the list of medication along with many others. I was given a standard x-ray which showed cervical spondylosis, nerve root damage in thoracic spine and scoliosis. Had a few weeks of physio, some exercises to do at home and tried to carry on as normal.
I don't think I've ever really been without problems since the start up until now. I'd say my symptoms wax and wane with a slow progression with periods that are really bad, developing further symptoms that have not gone away. I was on amitriptyline for a few years which helped keep nerve pain pegged back a bit and improved my mood. I was started off on 10 mg had an allergic reaction and had to start off by chopping a tablet in half (5mg) Eventually over a few years it was gradually increased to 30 mg, it then began to lose efficacy so GP tried putting it up to 40mg which didn't help, so that was stopped.
It's only recently that I've been forced to really stand back from it all and recognise the pattern as I've had to just muddle on and adapt, believing I've been okish when in actual fact I haven't. I've struggled to hold down any type of work at all since first becoming ill and I now struggle to look after myself properly.
Recently I have had some worrying episodes. Had a couple of UTI infections after I was tested because of bladder and bowel problems and nausea.These have both got worse over the last few months. No infection on my last test though. My lower back has started to give me problems, stiffness and pain.
Have had a suspected seizure where I was fighting to stay with it. I went shaky and weak, ended up on the floor and had a sudden and severe pain in the front of my head that I can only describe as white ice, after which I promptly puked loads and pooped (even though I'd not been able to eat for a few days) and temporarily lost the feeling in my legs. Since then I've suffered with tremors/shaking, temperature sensitivity, numbness, headaches problems with my eyes and vision. The last frightening episode had meon the bathroom floor at my mums for about four hours barely able to move whilst in severe pain, (stomach/back spasms) vomiting and losing control of my bowels and bladder. My mum finally helped me to bed where I had to have towels and a bowl because I couldn't control my bodily functions. 111 was phoned, both times, but on each occasion I wasn't asked to go into hospital. I often have to use a stick to walk any distance comfortably due to, balance, weakness, numbness and random loss of feeling in legs. I don't like to rely on it permanently, so got one of those that I can fold up on my better days
I'm now at the point where I've just had the result from my second MRI of the brain which came back 'normal' and have to go see my GP to discuss the results. I find it baffling as I suffer with cognitive problems and thought something might show up. Currently on Vitamin D tablets as my levels were well below what they should be. My calcium levels are fine, so at least I know my bones are healthy!
I've been tested for lymes disease, HIV, addisons and had just about every blood test going.
I agree that I suffer from PTSD due to domestic abuse/trauma and have had problems in the past with anxiety and depression, but I've improved over the last few years with only a few panic attacks. I'm not so much depressed anymore, but recently have had problems with motivation, planning, prioritising, multitasking and emotional lability. Have also come to realise that I eat really slowly and have had problems with chewing food and sometimes swallowing/choking. Spasticity, nerve pain, numbness, weakness and fatigue have gotten worse over the last year or so.
Anyway, I'm booked in to see my eye specialist in August, although my GP has told me to try and explain that I need to be seen sooner I have to ring them to try bring it forward and have a referral to the Chronic Fatigue Clinic towards the end of the month. Going through the tick box questionnaire I think I've been misdiagnosed with fibromyalgia, my symptoms don't fit with it, they never really have.
Has anyone any clues as to what is going on? I'm getting to the point where I'm sick of going to GPs and referrals. GP won't prescribe anything until he knows what's going on which is sensible I suppose.
I live alone and am fighting to keep the roof over my head too due to financial difficulties. Trying to keep myself as stress free as possible, but it's not always that simple.
I'm at a loss as to where it will all go from here. Got to the point where I'm past caring anymore and just trying to get on with life as best as I can. I try to see my daughters when I can and have a couple of close friends, am dating a lovely man and trying to remain positive, but there is that constant niggle in the background that all is not well.
Any advice would be appreciated. Sorry for the long intro and hope I've not bored the pants off of everyone!
OOps! Just noticed this post should probably be in 'General Discussions' Mods please feel free to move if you see fit. My apologies!
Is that correct that if u have MS u MUST inform DVLA and your insurance companys...............if u do not do this IF involved in even a minor RTA u can be fined 10000 and classed as having no insurance and possible loss of licence altogethe???
Edited by Scully to include 'tags' to previous discussion on this topic
Hi guys,
I don't hold a full driving licence, just a provisional. After my diagnosis way back in feb I dug it out and sent it off to declare my dx, also to change my address and surname (better late than never!) as I suddenly realised how much i need to be able to drive as it will give me so much more independence.
I filled it all out and got a letter back to say they needed my dr's details etc, sent off in march. Got a letter today (yes today 10m on!) saying they still had not made contact with my neuro, could I chase him up and get back to them? I have changed neuro's in this time and according to my nurse, current neuro is off until January (nice life for sum huh?!). So what do I do now? Just wait or try the old neuro again? Would he still count as my doctor? Why do we always end up having to organise things?!
All advice welcome, thanks
Lx
As Marina thinks it's too quiet on the forum I thought I would subject you to my driving licence replacement concerns. I have a short term licence that I have to renew every three years (as many of us do). It expires end of March. My Mobility car contract expires end of May. Three years ago it took them so long to do their checks and replace my licence that Motability would not allow me to be a named driver of my new car. As luck would have it, and after a lot of last minute frantic phone calls and faxes, I managed to get added as the driver just a day or two before I was due to collect the car.
I am now hoping the DVLA and my Neuro get their act together this time so I dont have a repeat of the fiasco of three years ago. This time I will start chasing earlier.
The DVLA do allow you to continue driving if your licence expires while they are still doing their checks but Motability insist on seeing a valid licence before you can sit behind the wheel.
However, in the meantime I have a pleasure of car hunting. Time to get a new one. Last time I picked a BMW 1Series M-Sport Coupe. A great car to drive but not very practical. This time I am looking for something a little more practical.
Of course, if driving licences and car choosing is what I am calling a problem then I have very little to complain about.
Regards,
John
Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.
If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.
The atmosphere is friendly whilst being compassionate, supportive and caring. Members also post about a variety of subjects not related to MS, as well as share jokes, talk about their hobbies, have fun, and more.
The MS People Forum is not responsible for advice or information supplied by members. We suggest you seek medical advice before trying anything.