Jump to content
Support, help, advice and information for Multiple Sclerosis. Ask questions and share experiences with people affected by MS.
Sign in to follow this  

A Survey into the new mobility criteria for PIP

1 post in this topic Last Reply

Recommended Posts


Thought people might be interested in this link, received by me from the MS Register.


Personal Independence Payment (PIP) is the new disability benefit that is replacing Disability Living Allowance (DLA) and they want to know more about how it’s affecting people with MS. They are particularly looking at the new 20 metre criteria for mobility support which means fewer people are receiving the highest rate.

Take the survey http://go.newvistalive.com/start/?jn=P18373&dS=1

They want to hear experiences from anyone currently navigating the PIP process or who is still on DLA, no matter what stage you are at. It should take around 20 minutes to complete and your responses will help the MS Society campaign for change across the whole of the UK.

The survey is being run by ICM Unlimited on behalf of the MS Society. So, if you have any questions about the survey please email the ICM Unlimited Research Team at mssociety@icmunlimited.com.

Your feedback will be completely confidential, and individual responses will not be attributable or made available to the MS Society, unless you give your specific consent.

You might receive an invite to this survey again, if you’re a member of the UK MS Society Campaigns Community or Shift MS but you only need to complete it once. Your views and experiences will help the MS Society call for a welfare system that makes sense for people with MS.

If you feel you need advice or support relating to issues raised in this survey you can contact the MS Society helpline on: 0808 800 8000 or via email: helpline@mssociety.org.uk.

Edited by Nick
  • Like 3

Just another Warrior...........

Share this post

Link to post

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
Sign in to follow this  

  • Similar Topics

    • What Criteria Provided A Diagnosis?

      Despite years of attacks, multiple symptoms, MRI of brain showing lesions coming and going and involvement of the corpus callosum, I still cant get a diagnosis of MS from my neurologist - or a diagnosis of any kind! Needless to say I'm pretty frustrated. Do patients in the UK have similar problems obtaining a diagnosis? I live in a very isolated part of Ontario, Canada hundreds of miles away from a 'second opinion' so when a patient has only one neurologist serving a huge area, well....Any comment will be greatly appreciated. Thank you.

      in General Discussion about MS

    • MS Register survey

      Like a few other people here I have been signed up with the MS register for some time. They have just brought out a new survey which I have just completed this morning. A bit difficult to get through, that one, but I did my best to understand it!! For those that have perhaps not heard about the regular long term survey, it's well worth having a look and signing up, every little helps.   Nice and sunny for once here in Great Yarmouth, off to my seated exercises shortly, where I shall ware myself out and generally have a good chat to a few very different folk from all walks of life...........and ability.     Nick

      in General Discussion about MS

    • [SURVEY] What Difference Does Having A Dx Make?

      MARINA ASKED (via the mailing list):   What difference would having a definite dx make to those of you (like me) who are still without a definite dx (as tests etc are still inconclusive etc)?   Or, what difference did it make to those of you who have had a definite dx?   How does having a dx help (given that there is no cure) and what does it change?   To what extent does it matter if one knows for sure or not? If it does matter, what makes it matter?

      in A Survivor's Guide to Multiple Sclerosis

    • Mobility Scooter advice please!

      The most challenging aspect of my situation ( FND with CFS but going back to neuro next month questioning MS again) is the fatigue.   I'm in my forties with a young daughter at primary school. I don't drive (never learned) and am no longer able to safely ride my bike, so the two mile round trip to school has become a disadvantage to my health.   So...I'm seriously thinking about getting a mobility scooter. I love the walk there and back but by the end of the week my symptoms have got worse, my legs turn to lead and the council must have re-surfaced the path in rice pudding! I just need help on the afternoon school run and during the rough weeks. I need to keep walking (with my trusty stick) but I'm tired of getting so tired from something I used to do with ease.   I still have a few weeks to wait before my CFS therapy and my 2nd neuro appointment but I can't wait. So I'm going to test-drive some tomorrow. Any tips?

      in General Discussion about MS

    • MS Society Survey

      The MS Society is looking to gain information about access to symptom management treatments, rejected by NICE.   The more responses, the better   http://www.surveygizmo.com/s3/1770463/symptoms  

      in General Discussion about MS

About Us

Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.

If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.

The atmosphere is friendly whilst being compassionate, supportive and caring. Members also post about a variety of subjects not related to MS, as well as share jokes, talk about their hobbies, have fun, and more.

The MS People Forum is not responsible for advice or information supplied by members. We suggest you seek medical advice before trying anything.