I hope you are all keeping well and cool in this heat. I haven't been on here for a while, the last time was around the time I was going to start Brabio in January. Briefly, I was taken off of Tecfidera after having a very low lymphocyte count, prior to that I had been on Avonex for 10 years. It was suggested that I try Brabio, I wasn't keen but agreed. Unfortunately I could not face the really horrendous sounding side-effects - particularly the shortness of breath and increased heart-rate. I was sat at home with the nurse for over an hour trying to gather up courage but just felt unable to have the injection. Now I have been offered Avonex again, or Plegridy as an alternative. I really don't fancy either to be honest, and to me they feel like a backward step. But I have been told that I am 'doing well', a recent MRI showed no new lesions and unbelievably, some old lesions had healed - and that's after taking nothing for 9 months. However I feel I should be taking something, and maybe Avonex or Plegridy might be better than nothing. Have any of you experience of taking Avonex and switching to Plegridy, or even just taking Plegridy? I am frightened of the unknown effects of Plegridy, but feel a fortnightly injection might be a better option than a weekly one. If I can gather my courage, that is!
Thank you very much!
I am searching for advice. I became allergic to copaxone and the side effects of tecfidera meant I couldn't get to the full strength. I have since been on plegridy for 33 weeks and I'm finding it difficult. One week out of every 2 the DMT is intensifying the MS symptoms. I've been told that there is not much else I can do and should persevere in the hope my body adapts. As I've already rejected the first 2, I'm in the mind of persevering but I'm getting worse. I'm taking a lot of other medication for the pain. Pregabalin, duloxetine, paracetamol and ibuprofen. The first two at maximum doses and the second two after the injection for 5 days. I'm finding it difficult to know what is making me feel this way. Before diagnosis I never took tablets, now I'm over 20 a day at times. Has anyone else had problems with plegridy? I don't want to give up as I'm running out of options. Any help will be greatly appreciated.
Good afternoon everyone,
I haven't been here for a while, I hope you are all doing okay. I wondered if anyone here has changed from avonex to plegridy - and what their experience has been? I have been on avonex for 10 years but because I am taking methotrexate for rheumatoid arthritis, I can't take any of the oral DMT's. I thought plegridy might be a better option. Any thoughts?
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