Jump to content
The MS PEOPLE UK Forum
Support, help, advice and information for Multiple Sclerosis. Ask questions and share experiences with people affected by MS.
Nick

DLA to PIP

90 posts in this topic Last Reply

Recommended Posts

Fine
WobblyGreg
On 01/11/2018 at 17:20, Shirl said:

 

SHIRL

Not sure whether you saw my earlier post.

 

But forgot to say after my appeal ended I got the result confirmed in letter form said my thank you's turned around stumbled just about corrected myself with my stick and freind grabbing me .

 

When we got outside my freind said " And you couldn't have done than when we walked in " 🤗

Share this post


Link to post
Share on other sites
In Pain
Shirl
20 hours ago, WobblyGreg said:

SHIRL

Not sure whether you saw my earlier post.

 

But forgot to say after my appeal ended I got the result confirmed in letter form said my thank you's turned around stumbled just about corrected myself with my stick and freind grabbing me .

 

When we got outside my freind said " And you couldn't have done than when we walked in " 🤗

Hi @WobblyGreg

I did read your latest posts and I'm glad you've reached an award after a very difficult and lengthy process. The system has become too complex and weighted against those who are vulnerable and ill.

 

If 'catching' false claimants was necessary, it could have been done without labelling us all guilty until proven innocent. The DLA to PIP situation should not have arisen.

 

However, many of us have lived through the process and can now support those who have yet to experience it. Seeking advice and filling in forms, so that DWP and appointees comprehend our mobility and daily living issues in their own language, have become necessary reactions.

 

Sadly the W for Welfare has weakened to the point of being broken. We did not ask to have this neurological condition.

 

I hope you feel stronger this week.

  • Like 1


Shirley  "one day at a time" - it's all anyone can do"

 

This year, my husband is raising funds for MS Trust with a 
Pete's No Beard Or Hair Cuts 2019 (Colour in December) Challenge for MS Trust

Thank you all

Share this post


Link to post
Share on other sites
Fine
WobblyGreg

Shirl

Thanks for reply.

Yes I feel stronger but it's like that come down one gets after a bout of adrenaline .

 

I will of course make a claim in future but I am lucky enough to be able to live on what I get now.

 

As I am now back on everyone's radar costing the country a fortune which is something DWP don't seem to grasp.

 

Money back from mobility car ,backdated money from Tribunal award.

 

With the deals car dealers are doing at the moment I'm probably paying same as DLA was for car.

 

Monthly I'm the difference between DLA high and PIP STANDARD  worse off .

But I'm glad I'm now getting something and I can relax for 5 years at least .

 

  • Like 2

Share this post


Link to post
Share on other sites
Nick

I've just been trying to catch up on this thread. 

 

The thing that amazes me is the clear inconsistances of peoples DWP 'results'  A system purely based on a computer algorithm, nothing more, nothing less.  I believe this was originally an american system, adapted for use in it's current form.  

 

I was originally under the impression that the DWP would ask questions from our specialists.  Since my own award (which was also 'wrong') I have spoken to various members of my MS 'team' and have discovered that it appears they are vary rarely contacted directly from the DWP. 

 

This is the mistake I made. I should have initialy ask the neurologist, MS Nurse, Continence Nurse, Physio' & Wheelchair Services for written reports, prior to submitting my first application. 

 

Of course, if you remember, the initial forms come with the caveat that they be returned within a short period (can't recall exactly but think it was a month) Which makes it highly unlikely that all of that could be arranged. At the same time it seems very counter productive that those valuable specialists should spend their time doing the DWP's work for them. 

 

Going back to the computer algorithm,  These things rely on the quality of the information put into them, in this case there were clearly  a LOT of flaws! hence the mayhem that has been caused since it's introduction. A system then with poor efficiency, one that presently is costing more than the previous DLA system. Which by the way had a low percentage of fraudulent claims. 

 

My conclusion is that even though this was designed to save money, yet has cost more, it is unlikely to be scrapped. So prior to applying for PIP you need to gather as much written evidence as you can , I would also recomend subscribing to the 'Benefits&Work' website  

 

WWW.BENEFITSANDWORK.CO.UK

Get the benefits you're entitled to: help with employment and support allowance (ESA), personal independence payment (PIP), universal credit (UC), disability living allowance (DLA). Claims, assessments, appeals.

 

for their excellent guides and I would also seek professional help from one of the charities. 

 

Nick


Just another Warrior...........

Share this post


Link to post
Share on other sites
In Pain
Shirl
8 minutes ago, Nick said:

Of course, if you remember, the initial forms come with the caveat that they be returned within a short period (can't recall exactly but think it was a month) Which makes it highly unlikely that all of that could be arranged. At the same time it seems very counter productive that those valuable specialists should spend their time doing the DWP's work for them. 

Yes, @Nick my main complaint about the 'application system' was the ridiculous timescale. Indeed, the forms are sent to you on a certain date, after the initial telephone call to 'apply' (for something you already have but now need a new 'award' under a different product name). From that date you have four weeks to return the application. Given that mine took one week to arrive and I had to allow another week for the return journey, I had two weeks to compile my forms. Then came the face-to-face assessment where every i and t is dotted or crossed to ensure compliance with the computer's requirements.

 

It would not be possible to predict when your DLA will end and PIP application be requested/invited/mandatory  so expecting medical professionals to jump through hoops is wishful thinking in the extreme. I relied on accumulated evidence of hospital letters of which I had plenty. Never throw them away! That's letters following an admission or appointment, not appointment notifications. You can discard those via the shredder, thus keeping your records specific.

 

Plus my secret weapon was my dear husband - he used to work for a national charity where he advised and supported claimants. He is now retired but his experience and calm kept me sane. (He would not advise anyone else as his professional experience is no longer valid to others). We still had to work through those forms but he was able to deal with my emotional outbursts to construct a readable, coherent response. For that reason, I advocate getting the support of someone with current hands-on experience, or a charitable organisation skilled in these matters, like BenefitsandWork - even then, you need to act quickly. The whole thing took over our lives for two weeks and that, on top of dealing with a lifelong incurable (so far) disease is stressful and unfair. But that is stating the obvious.

 

I've probably repeated comments I made earlier in this thread. Sadly that is the nature of the topic - unending misery for all who encounter the application process. Stay strong.

 



Shirley  "one day at a time" - it's all anyone can do"

 

This year, my husband is raising funds for MS Trust with a 
Pete's No Beard Or Hair Cuts 2019 (Colour in December) Challenge for MS Trust

Thank you all

Share this post


Link to post
Share on other sites
Fine
WobblyGreg

@Shirl

Had a strange phone call yesterday whilst out taking son to school ( later than normal  school run)

 

My daughter said DWP rang said they wanted to speak to me about tribunal 

They were meant to ring back this morning never did!

 

I dialed last no ring back said caller withheld number .

My intial thought was DWP Usually send letter and it was scam ?

 

Any thoughts ?....

Share this post


Link to post
Share on other sites
In Pain
Shirl
4 hours ago, WobblyGreg said:

@Shirl

Had a strange phone call yesterday whilst out taking son to school ( later than normal  school run)

 

My daughter said DWP rang said they wanted to speak to me about tribunal 

They were meant to ring back this morning never did!

 

I dialed last no ring back said caller withheld number .

My intial thought was DWP Usually send letter and it was scam ?

 

Any thoughts ?....

I had a letter from an outsourced group after my DWP claim, followed by a phone call. They were based in London. The call proved useless (even though I was happy to give useful feedback) because the caller thought I'd been to an ESA Assessment centre, This was following my successful PIP claim. So we had to curtail the call before confusion drove me battier than usual.

 

I think this may have been a similar call to you. It is up to you if you comply - it shouldn't be mandatory or too invasive. Hopefully.



Shirley  "one day at a time" - it's all anyone can do"

 

This year, my husband is raising funds for MS Trust with a 
Pete's No Beard Or Hair Cuts 2019 (Colour in December) Challenge for MS Trust

Thank you all

Share this post


Link to post
Share on other sites
Fine
WobblyGreg

@Shirl 

Funnily enough they rang again today same sort of time and yes I  was out again lol

Thanks for advice I hate DWP so much my hackles are instantly up.

If I'm about I will see what they say and let you know.

Share this post


Link to post
Share on other sites
Fine
WobblyGreg

I have been advised that the following is what I should say if the Nazi DWP Ring again..

DWP are not entitled to discuss your appeal award with you, so don't.  If DWP try to insist you discuss your appeal award, tell them they must ask the judge for a statement of reasons (SOR).  This is what they should do if they have a question about the tribunal's decision.

Share this post


Link to post
Share on other sites
Fine
WobblyGreg
Well the letter arrived 
Just asked if I'd been in hospital or prison and if bank details were the same.

Sent a 2nd class return envelope I took picture of everything and will send back today.

Share this post


Link to post
Share on other sites
Nick

You may recall that my PIP application process back in 1018 was successful, although I had to concede my original 'higher rate' mobility for the lower rate.(I could have appealed but decided not to)  So here we are approaching 2020 and once again I must start thinking about PIP. The claim runs out this coming august and there is already a need to start planning for it!! What a pain!   Generally speaking I see my neurologist once a year and I saw him a couple of weeks ago. This was an opportunity for me to discuss PIP.  I don't really feel that any neurologist should be spending their valuable time on bureaucracy , however  he was only too glad to discuss this forthcoming claim and told me that I should be able to claim the higher rate of mobility.  He has provided me with a covering letter, describing my diagnosis and limited mobility.  

It's apparent the DWP rarely, if ever contact specialists directly from the details on the completed application, rather depending on what documentation the applicant includes.  Even then I wonder if any of that gets read! 

The dilemma now facing me is exactly how I fill in that form. I shall be doing these with the support of the Benefits&Work website, to which I subscribe, thereby having access to the full range of advice.  When it comes to the mobility section I have a choice of 'how far can you walk' 

That is where it gets complicated ! Certainly I can walk more than 20 Mts, but can I do that repeatedly? can I do that on a bad day? can I do that when my MS hits me, or is affected by a UTI, or those other outside influences? Then the answer is no, so do I tick the box that says "It varies" 

These are the finer points of how hard it is to get across anything meaningful on a form whose decisions are made, not by a person, but by an algorithm in a computer. 

As time ticks along I will keep you all informed on how things progress.

 

Nick 


Just another Warrior...........

Share this post


Link to post
Share on other sites
Procrastinating
Stumbler

@Nick , I'm sure BoJo appreciates your sacrifice, for the good of the country. So, your reduced award was for two years? Did they really expect you to be cured in this timeframe?

I'm still waiting for my invitation to apply for PIP. However, you should indicate that you can't walk 20 metres. Why give them the opportunity to mark you down? They don't need more encouragement.

 

Well done for being prepared. Take no prisoners this time......... :gunray:

 

:moonieman:

  • Like 1

John aka Stumbler (as I do fall over!)

Illegitimi non carborundum

 

"Life is not a journey to the grave with the intention of arriving safely in a pretty and well-preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming... "Wow! What a ride!"

Share this post


Link to post
Share on other sites
Nick

Thanks for that John,

What gets me is the legal aspect of all this.  The law is not clear, so how can you honestly decide just how you answer the question. It's all very well to simply tick the box, yet that fails to address the problem............I know, I know..I should not be concerned about all this, but it does annoy me!

What I would say is that the physical"Interview" by theDWP (apparently not a medical) is a complete waste of time and money. What does matter is understanding how to answer all those questions correctly and understanding what those questions actually refer to.  The reason it annoys me so much is that for many people the complexity of this means that the outcomes are simply in favour of the governments reduction in health care. 

Yet for all that they are apparently spending more money on these outsourced schemes than they would if they simply scrapped the whole thing.

A legacy I believe of right wing politics and a chap called IDS. 


Just another Warrior...........

Share this post


Link to post
Share on other sites
Procrastinating
Stumbler

Yes, @Nick , you do need to fully understand the questions AND the correct way to answer said questions. Preparation is so key.

 

I don't get dragged into actual political discussions - too divisive! They're all as bad as one another! :wink3:

 

:moonieman:

  • Like 1

John aka Stumbler (as I do fall over!)

Illegitimi non carborundum

 

"Life is not a journey to the grave with the intention of arriving safely in a pretty and well-preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming... "Wow! What a ride!"

Share this post


Link to post
Share on other sites
Nick

That's a wise answer! 

 

 

 

  • Like 1

Just another Warrior...........

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

About Us

Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.

If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.

The atmosphere is friendly whilst being compassionate, supportive and caring. Members also post about a variety of subjects not related to MS, as well as share jokes, talk about their hobbies, have fun, and more.


The MS People Forum is not responsible for advice or information supplied by members. We suggest you seek medical advice before trying anything.
×