I just saw this and thought it was of interest
NHS Trusts are being urged to follow NICE recommendations to improve care for patients with multiple sclerosis (MS), following the results of a national audit.
MS is the most common neurological condition in young adults in the UK, affecting around 100,000 people. It is an incurable, unpredictable, life-long, challenging condition that affects every part of a person's life. It can have a huge impact on family and social life, and lead to loss of work and independence.
The audit, conducted by the Royal College of Physicians and the MS Trust, found that there has been little or no improvement in care for MS patients in the last five years, and NICE guidelines for the management of patients with MS are no closer to being met today than when they were first launched in 2003.
None of the six key recommendations made by NICE have been implemented widely or fully, such as ensuring that a rapid diagnosis is offered to all patients once they have experienced symptoms suggestive of MS, and making sure specialist services are in place.
One third of trusts have no plans to improve neurological services in the next year and most are giving insufficient management attention to joining up services across the NHS or with social care.
The audit also revealed that basic symptoms such as pain, fatigue and problems with cognition are not being treated correctly, and that despite people with MS losing on average 18 years of their working lives, most people do not have access to specialist vocational rehabilitation in most areas.
The audit authors concluded that
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