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Support, help, advice and information for Multiple Sclerosis. Ask questions and share experiences with people affected by MS.
Karibou

What Criteria Provided A Diagnosis?

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Karibou

Despite years of attacks, multiple symptoms, MRI of brain showing lesions coming and going and involvement of the corpus callosum, I still cant get a diagnosis of MS from my neurologist - or a diagnosis of any kind! Needless to say I'm pretty frustrated. Do patients in the UK have similar problems obtaining a diagnosis? I live in a very isolated part of Ontario, Canada hundreds of miles away from a 'second opinion' so when a patient has only one neurologist serving a huge area, well....Any comment will be greatly appreciated. Thank you.

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Stumbler

For a Neurologist to diagnose a case of MS, the patient has to have satisfied the McDonald Criteria :- https://www.mstrust.org.uk/a-z/mcdonald-criteria). This knowledge may enable you to have a constructive conversation with your Neurologist.

 

Just be aware that Neurology does cover a wide subject area, so your Neurologist may not be that familiar with cases of MS. Although that would surprise me as Canada is a hotbed for cases of MS.

 

It may be worthwhile contacting the MS Society of Canada (https://mssociety.ca/) to see if they can provide you with any suggestions.

 

:moonieman:

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John aka Stumbler (as I do fall over!)

Illegitimi non carborundum

 

"Life is not a journey to the grave with the intention of arriving safely in a pretty and well-preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming... "Wow! What a ride!"

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Karibou

Many thanks for your instructive and constructive response. You may be quite right assuming that my local neurologist is unfamiliar with MS (her specialty is vascular neurology) however, despite this she is also the lead neurologist at my local MS clinic. Her assistant neurologist barely speaks English).  While I have contacted the MS Society here in Canada, it doesnt compare to what you have in the U.K.  The real problem is my remoteness and, unfortunately, the dominance of the pharmaceutical industry (they pay for the interferon treatment et al). I have explained to my neurologist that I am not interested in treatment other than that for simple symptoms, e.g. Amantadine for fatigue. But, she has refused to give me a diagnosis. If I had a higher income I would be able to travel the 1000 miles to Toronto, Ontario for a decent assessment. But, again, thank you for your response - I envy my compatriots in the U.K.

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