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Marina

Tip of My Tongue - Word Finding

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Sluggish
Marina

“Find that word that you've been thinking about all day but just can't seem to remember”. This is something we MSers get, whether occasionally or frequently. This site might help you find that word:

 

http://chir.ag/projects/tip-of-my-tongue/

 

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Marina

(belated DX in June '05, SPMS)

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Rolley

I used this and found it to be very useful, thank you.

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Sluggish
Marina

Thanks @Rolley , I wasn't sure quite how useful it might it to others, so I'm pleased you found very useful. I'd only tested briefly once, to see if it would find "microwave"; this was a real-life example of a word an MSer I know once couldn't remember. I entered "m" for Partial Word > Starts With, and "heat" for Word Meaning, and left everything else blank. Indeed, "microwave" came up, albeit a bit further down the list of suggestions.

 

I hope others find it useful too.


Marina

(belated DX in June '05, SPMS)

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Happymama

OMG thank you.  I thought I was going mental, or dementia - I have to cycle through words to find the right one and though it was a perimenopausal thing, now I think it's because I'm in a relapse.  

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Gosport Nancy
On 03/12/2022 at 20:26, Happymama said:

OMG thank you.  I thought I was going mental, or dementia - I have to cycle through words to find the right one and though it was a perimenopausal thing, now I think it's because I'm in a relapse.  

I haven't got an MS diagnosis, but weirdly, while browsing my NHS App I found a diagnosis of ME that wasn't available to see until recently. I had a diagnosis of ME in the early 90s and no one told me.

 

That's pretty weird in itself that no one mentioned this to me, but I have never asked a GP about ME, so have no idea where that diagnosis came from. ME people also have this word-finding difficulty. I have had this difficulty my whole life but this got worse following a brain injury following a cardiac arrest in 2016

 

I seriously don't think I will get an MS diagnosis any time soon as I have an ADHD appointment first and the waiting list can be 5 years long in my county

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Sluggish
Marina

@Gosport Nancy  A diagnosis of ME may be something for you to chase up? I was told I had "classic" symptoms of ME about 20 years before my DX of MS, when MS wasn't even considered. ME and MS share many similar symptoms, so it can be difficult for doctors to tell the wood for the trees. Unfortunately, there's no test for ME (unless one's since been found), whereas we have MRIs and LPs for MS. To this day, we don't know if my ME was actually MS or if I might actually have both.

 

That said, I did have a bit of tip-of-the tongue word finding difficulties prior to my MS DX, and it's got a bit worse since then, which I put down to the MS.


Marina

(belated DX in June '05, SPMS)

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Busy
Gosport Nancy
3 minutes ago, Marina said:

@Gosport Nancy  A diagnosis of ME may be something for you to chase up? I was told I had "classic" symptoms of ME about 20 years before my DX of MS, when MS wasn't even considered. ME and MS share many similar symptoms, so it can be difficult for doctors to tell the wood for the trees. Unfortunately, there's no test for ME (unless one's since been found), whereas we have MRIs and LPs for MS. To this day, we don't know if my ME was actually MS or if I might actually have both.

 

That said, I did have a bit of tip-of-the tongue word finding difficulties prior to my MS DX, and it's got a bit worse since then, which I put down to the MS.

My health record already has a diagnosis of ME recorded so it doesn't need chasing up

I still think the neuropsychology appointment that is in the pipeline is the way to go.

I am now in stage 4 heart failure and stage 3 chronic kidney failure so unless something changes it's unlikely that I'll survive long enough to see the next doctor on the list of assessments.

 

My main goal is to move closer to my family while living close to the best hospital for my cardiac needs. I can always then go to Portsmouth Hospital Trust for their input as I am getting no-where in East Sussex

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Sluggish
Marina

I'm so sorry you have all that to contend with... it all sounds quite awful for you.

 

By "chase up", I meant follow up, as there are things like ME clinics to maybe help with the ME side of things.

 

I do hope you manage to move, and get the help you're looking for and need.


Marina

(belated DX in June '05, SPMS)

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Busy
Gosport Nancy
2 minutes ago, Marina said:

I'm so sorry you have all that to contend with... it all sounds quite awful for you.

 

By "chase up", I meant follow up, as there are things like ME clinics to maybe help with the ME side of things.

 

I do hope you manage to move, and get the help you're looking for and need.

I apologise for the misunderstanding. I have been able to manage the ME as much as I can. I was a member of  Action for ME back in the early 90s and I still take their advice from their website.

 

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Happymama
4 hours ago, Gosport Nancy said:

I haven't got an MS diagnosis, but weirdly, while browsing my NHS App I found a diagnosis of ME that wasn't available to see until recently. I had a diagnosis of ME in the early 90s and no one told me.

 

That's pretty weird in itself that no one mentioned this to me, but I have never asked a GP about ME, so have no idea where that diagnosis came from. ME people also have this word-finding difficulty. I have had this difficulty my whole life but this got worse following a brain injury following a cardiac arrest in 2016

 

I seriously don't think I will get an MS diagnosis any time soon as I have an ADHD appointment first and the waiting list can be 5 years long in my county

A friend has ME and takes Monofidil twice a day, plus a load of other stuff.  

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Gosport Nancy
22 minutes ago, Happymama said:

A friend has ME and takes Monofidil twice a day, plus a load of other stuff.  

I take Co-Enzyme Q10 every day. I originally started taking it about 30 years ago to treat heart failure. It must have worked as it's unusual for people to survive that long with heart failure.

 

I haven't taken anything specifically for M.E. as I have got along without it. I rest when I need to and choose to live alone so I'm not looking after someone else.

 

I recently spent 9 years as a carer and now want to get my health back on track and work towards my plans to move back home to Hampshire to be near my family

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