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Melodee

Question :)

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Melodee

Hi, so I have not been diagnosed with MS as I am still waiting to see the neurologist. I have had 2 MRI’s one was ordered of my brain by my GP and then my spine and pain Dr had one done of my neck as I started having numbness pins & needles in my hands and arms. I suffer with severe fatigue that makes it hard for me to work. Today I have been having a feeling like something is squeezing my ribs on the right side that radiates to my spine. My question is were any of you tested for vitamin D deficiency? Or diagnosed with having the Epstein-Barr virus? Thank you for your time.

Melodee

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Stumbler

Hi @Melodee and welcome to this Forum. I can understand why you've joined us. It is a UK-centric Forum, but MS does not respect international boundaries.

 

Both vitamin D deficiency and having Epstein-Barr Virus ( EBV) antibodies (indicative of an earlier EBV infection) are both factors that can leave us predisposed to MS. However, other factors are involved too. Your symptoms do present in MS, but they also present in various other conditions too.

 

A Neurologist, preferably with a specialism in MS, will be best placed to interpret the MRI scans and request other tests to see whether MS can be ruled in or out.

 

:moonieman:


John aka Stumbler (as I do fall over!)

Illegitimi non carborundum

 

"Life is not a journey to the grave with the intention of arriving safely in a pretty and well-preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming... "Wow! What a ride!"

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Tired
Marina

Hi @Melodee and welcome from me too.

 

I had EBV. However, not everybody who's had it goes on to develop MS, and not everyone who's got MS had EBV. We have an old poll here re EBV, in case it's of interest:

 

 

Re the squeezing pain in your ribs, in our Resources - Symptoms and Diagnosis section, there's a link to a site about what's known as the "MS Hug", in case it's of help:

 

iStock-471740987-587666793df78c17b6309c1
WWW.VERYWELLHEALTH.COM

MS Hug or girdle-band sensation is a symptom of multiple sclerosis. Find out what it feels like, what it means, and how you can cope with it.

 

A pinched nerve or other non-MS issue in the neck could cause numbness, pins and needles in an arm and hand, which sounds like why your pain specialist asked for an MRI of your neck. It's rarer to have a neck MRI for MS, as they usually do brain MRIs for MS and sometimes a spine MRI.

 

Have your doctors run tests for things like anaemia, thyroid, and various vitamin deficiencies? Just in case it's not MS, you might like to have a look at another section in our Resources section, about Conditions that are similar to, linked to, or mimic MS.

 

In the meantime, please feel free to ask us more :flowerface:. And please keep us updated on how your MRI goes and what your neuro says?

 


Marina

(belated DX in June '05, SPMS)

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Melodee

Thank you for replying. Yes all blood work has been run to rule out things like Lupus, vitamin B, thyroid and so far everything looks good. The neck MRI is to look to see if my degenerate disc disease has advanced. I have already had 1 cervical disc replaced 2 years ago. My spine Dr is working closely with my Neurologist which is good. My GP is the one who suspects MS and that is how all of this started. I will see the Neurologist April 2nd. I was just wondering about this hug I’m having and if maybe most MS patients who get them say they only last a few minutes as mine is going on 2 1/2 days now. So maybe it is kidney infection or a lung problem. Thank you and hopefully I get more answers soon so whatever is going on we can treat and move on with life 🙏🏻😁

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Marina
43 minutes ago, Melodee said:

I was just wondering about this hug I’m having and if maybe most MS patients who get them say they only last a few minutes as mine is going on 2 1/2 days now.

I think the duration of a "hug" varies from MSer to MSer. Generally, though, I'd say most have it for longer than just a few minutes.

 

This is another link about it:

 

The%20MS%20hug.png
WWW.MSTRUST.ORG.UK

Any pain in the chest needs checking by a doctor unless you are sure of the cause, for instance if you have already been diagnosed with the MS hug and the symptoms have not...

 

Have you also had a full urine test? It's not uncommon for MSers to have UTIs.

 

I hope all goes well for you on April 2  :crossfinger:


Marina

(belated DX in June '05, SPMS)

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Melodee

@Marina so today I was in the ER for the pain that I have been feeling. All my blood, Urinalysis, X-rays and ultrasound were normal. They want me to get a HIDA scan of my gallbladder to see if my gallbladder is working properly. From the pictures it looks fine but they say it may not be functioning correctly. I am ok with ruling things in or out with this whole process so the more information I have for the neurologist I feel the better. Have you or anyone else that have experienced this pain or unwanted “Hug” as they call it ever had tests for gallbladder problems? Again thank you for answering my questions. I do not find a lot of information here in the US but always am able to find it in the UK. 

Melodee

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Stumbler

@Melodee , the "MS Hug" can give similar sensations to Gallbladder problems, so the latter is best eliminated:-

 

 

:moonieman:


John aka Stumbler (as I do fall over!)

Illegitimi non carborundum

 

"Life is not a journey to the grave with the intention of arriving safely in a pretty and well-preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming... "Wow! What a ride!"

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Tired
Marina
6 hours ago, Melodee said:

I am ok with ruling things in or out with this whole process so the more information I have for the neurologist I feel the better. Have you or anyone else that have experienced this pain or unwanted “Hug” as they call it ever had tests for gallbladder problems?

I'm not aware of anyone on this forum having had gallbladder tests in order to rule out the hug; I've just run a search on the forum and there's no-one. That said, I wonder if they check you out more thoroughly in the US than here? As Stumbler says, the MS Hug can give similar sensations to all sorts of other problems, gallbladder included, so it's good that they're running that scan for you. And, as you say, the more they rule in or out, the better for when you see the neuro.

 

PS - Thanks for the comment re info in the UK :hoop:


Marina

(belated DX in June '05, SPMS)

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Melodee

@Marina thank you And @Stumbler for always replying 😁 one thing I do is gather all of my own records and research as much as I can. I am not a fan of being in limbo with things and you could say I am nosey about things. I always have been because I feel knowledge is very important if you want to understand anything about yourself or others. My vision problem has never really been diagnosed as I waited a long time to have it checked out due to no insurance. So hopefully the neurologist will be able to see if there is or is not any chance it could be optic neuritis from my MRI. The neurologist I am seeing specializes in MS which is great because all the other Dr.’s I have been seeing know nothing about MS and they will even tell me they do not know. Have a great day in the UK 😁 and thank you again.

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Marina

You definitely sound like you're going about things the right way, Melodee, by gathering all your own records, for instance. Excellent, too, that the neuro is an MS specialist, it can make quite a difference.

 

Unfortunately, though, diagnosing MS often seems to lead a lot of people into LimboLand... mainly as it's notoriously difficult to diagnose unless initial MRIs (or LPs, if absolutely necessary) are sufficiently definite for MS, which they often aren't and hence the need to wait some months for a 2nd MRI to look for changes - what is referred to as "dissemination in space" (see link further below re the McDonald criteria for a DX, which you may already know).

 

An MRI won't detect optic neuritis, I'm afraid. For that, there's another test, a VER:

 

MS_RGB_col_300px.png
WWW.MSTRUST.ORG.UK

An evoked potentials test measures the speed of nerve messages along sensory nerves to the brain and is sometimes used in the diagnosis of MS. Your brain produces electrical...

 

Have you been to an optician and had one of those digital photos of the eye done (I momentarily forget what it's called: MS brain fart moment!)? When I was in LimboLand, my optician did such a photo and it indicated a mild ON. That alone isn't enough as it needs at least an opthalmologist to test it further for a DX of ON. If your neuro suspects it might be ON, he should be able to arrange a VER for you.

 

The McDonald criteria:

(there are 2 links in this Resources page)

 

 

We may be on the quiet side these days, but there's usually always someone who'll try to help in one way or another :flowerface:

 


Edited by Marina
Added line re link to McDonald Criteria

Marina

(belated DX in June '05, SPMS)

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