Hi Everyone, I am new here. I haven't het been diagnosed with MS although I am under investigations. Trying to keep a long story short (very hard lol!)... I am 26. When I was 15 I had glandular fever and never been well since. Three years after GF I was diagnosed with hashimotos thyroiditis. Around that time I started getting nerve pain in my right side (pelvis) that has got progressively worse ever since. 8.5 years on and its spread from my pelvis to pretty much my entire right side of my body ans still undiagnosedx I have nerve pain in my pelvis, groin, hips, bottom, leg, foot, face, head, arm and back - ALL right side. I am tired ALL THE TIME and I really mean all the time. I also have problems with both my bowel and bladder including going to the toilet to urinate about 5 times a night in average! I have lots of other weird and wonderful symptoms like tingling, feeling like my skin is crawling, that I don't want to be in my body because it's so uncomfortable, the list goes on. I finally wrote everything down and put it on a diagram. My gp has now refered me to the neurologist and wants me to have an MRI and brain scan. I'm very worried about having MS and what the future holds if it is. Does it sound like it could be MS/something related? I look forward to hearing from you all :-) xxx
haven't been on here for a while. Hoping for a little reassurance to calm my niggling anxieties. Short story - on Avonex for about 1yr. Things going well until this week, developed pins and needles down left side from head to toes. Pins and needles is not a new symptom, I have experienced it before in the same areas. Thought it might be a UTI so dipsticked my urine and +ve to leukocytes and that's it. Sent it off to get tested and my manager (we're nurses) gave me some antibiotics in case. Result today showed no growth but white cells were present. Has anyone else had this where urine has shown no growth? I can't help but feel a little anxious to have symptoms again as apart from mild pins and needles I've not had any major symptoms since starting avonex. It's to be expected right? I'm worried its a relapse and not just a blip but I suppose just have to wait and see how it plays out.
i just came across something on the mss website. Three young women posting about thier experiences looking after thier mums after many years with ms. Its terrified me to be honest. Ive just been in tears to hubby but he doesnt know what to say to me. These ladies were left unable to do anything at all. It sounds horrific and now all im thinking about is my poor children and what they might have to go through. Is this how im going to end up? Im sorry im in major panic mode right now.
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