Hi all. Hope everyone is doing as okay as can be! I've had these new symptoms for about .. 2-3 months now.. they're driving me insane.. My jaw/teeth clenching together. I'm not knowingly doing it. Just happens. Starting to really hurt my jaw and teeth from the strain and pressure of it. Also my eyes have been automatically squeezing closed. Sort of a similar feeling to when cutting onions (minus the tears and stinging) but that urge to squeeze the eyes shut. Does anyone else experience these? Thank you!
I was diagnosed with RRMS in 2014.
Until the last 6 months, I have been coming down with fever so bad it puts me in bed for days and nights. I'm taking Aubagio 14mg daily. It's really starting to change my life. My gp is useless and does not listen. Neither does my ms nurse . Nothing gets investigated and I feel so let down.
I hope no one minds me joining and posting here. I don't have a diagnosis of MS but I have a long and tedious list of random symptoms. I feel I'm being fobbed off by my GP who seems to think I'm either a hypochondriac or depressed. I don't think I'm either. I know some of the following are normal for a 45 year old working mum, but I'm listing everything to give a full picture...
Stomach issues and weight loss
Twitching muscles / nerves and jerking fingers
Sore, burning patches of skin (shoulder / armpit and thighs)
Weird numb, weak feeling in left forearm
Stiff, weak hands
Blurred vision at times
Lower back pain
Random pins and needles
Poor memory and concentration
Dizziness / feeling spaced out
I've had various tests and the only things that have come up are B12 deficiency (not pernicious anaemia), positive ANA and a hiatus hernia. GP says that none of these are likely to be causing my symptoms. I experienced a sudden earlyish menopause a few years ago but HRT hasn't helped me feel better. GP is reluctant to treat B12 as tests for PA were negative, despite me eating a good diet and taking supplements at the time.
The burning skin, finger jerking and weird feeling in my arm are new symptoms over the past couple of months and are what has led me here.
I know nobody here can diagnose me of course. I just wonder whether my GP should be doing more. They don't seem remotely interested to be honest.
Just wondering if you lot could advise meon something?
I've been getting back pain, neck/jaw spasms, random bruising, confusion and altered sensations such as; pins and needles, numbness and crawling on my skin.
They first suspected something to do with the kidneys, I had an ultrasound and everything looked clear to them.
Tonight, I experienced breathlessness and severe pains in my sides, as i was walking, felt as if something was moving inside of me.
I'm young, dumb and not sure what to do next lol.
Thanks, Paige :) xx
Hi everyone. I have just joined the forum in the hope that I get some help and advice from others that share similar symptoms to me.
I have been suffering from neurological symptoms for 4 weeks now and am currently undergoing tests and am under the care of a neurologist. I have been told it's looking highly likely that I have MS but I haven't yet had a confirmed diagnosis. Just a quick summary of my symptoms.
I'm 32 years old and a mother of 2. I initially started with a headache and burning sensation at the top of my head. The burning then radiated into my face and it felt numb. My symptoms then progressed and the burning sensation would flare up in different parts of the body. I have experienced a brief feeling of numbness in my arm a couple of times. Restless legs would also keep me awake at night.
For the last couple of weeks the burning sensation continues on and off, mainly top of my head and forehead but for the last few days I have been suffering from a strange and irritating sensation in the base of my spine and weakness in my legs. Some days it's been so bad I have trouble walking. By the time I go to bed my legs ache so much and it can be very painful. I used to get growing pains as a child and it's a similar pain. I am booked in for an MRIon the spinal column next week.
Both my doctor and neurologist have said they suspect I have MS.
Has anyone else suffered from symptoms like me and then been diagnosed? I have recently read about Motor Neurone Disease (MND) and am petrified it could be that. I have so many questions unanswered but I know I have to be patient whilst awaiting diagnosis.
I had a brain MRI a couple of weeks ago and it shows an area of signal change in the lower part of my brain. What does 'area of signal change' actually mean, is it the same as lesions? Also if I do have MS, what is my spinal MRI likely to show? The weakness in my legs is frightening me the most along with my burning head. Has anyone found a good pain reliever for these symptoms?
Sorry for the long post. Scared and anxious at the mo.
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