I hope you are all keeping well and cool in this heat. I haven't been on here for a while, the last time was around the time I was going to start Brabio in January. Briefly, I was taken off of Tecfidera after having a very low lymphocyte count, prior to that I had been on Avonex for 10 years. It was suggested that I try Brabio, I wasn't keen but agreed. Unfortunately I could not face the really horrendous sounding side-effects - particularly the shortness of breath and increased heart-rate. I was sat at home with the nurse for over an hour trying to gather up courage but just felt unable to have the injection. Now I have been offered Avonex again, or Plegridy as an alternative. I really don't fancy either to be honest, and to me they feel like a backward step. But I have been told that I am 'doing well', a recent MRI showed no new lesions and unbelievably, some old lesions had healed - and that's after taking nothing for 9 months. However I feel I should be taking something, and maybe Avonex or Plegridy might be better than nothing. Have any of you experience of taking Avonex and switching to Plegridy, or even just taking Plegridy? I am frightened of the unknown effects of Plegridy, but feel a fortnightly injection might be a better option than a weekly one. If I can gather my courage, that is!
Thank you very much!
Having done plegridy on legs and stomach for a few years I starting using arms but have the shakes and sickness, anyone encountered the same problem, I think it must be reaching my bloodstream too quickly but an unsure, please let me know
Good afternoon everyone,
I haven't been here for a while, I hope you are all doing okay. I wondered if anyone here has changed from avonex to plegridy - and what their experience has been? I have been on avonex for 10 years but because I am taking methotrexate for rheumatoid arthritis, I can't take any of the oral DMT's. I thought plegridy might be a better option. Any thoughts?
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