This is my first post on here...I just wanted to talk about where I am at with my diagnoses and maybe other people have been through or are going through similar experiences. Would be great to hear from you.
MS was first mentioned to me about four weeks ago, when I went to see a Neurologist after my GP referred me because I was having problems with my balance. A year before that, I had optic neuritis and had an MRI scan but was told, other than inflammation of the optic nerve, that all was well. I have been aware of my inability to stand for any length of time for about two years so I went back to my doctor, hence the referral. I arrived thinking he would say I had an ear infection or something...He called me in late for my appointment and said he had just been looking at my scan. He said it showed lots of areas of inflammation. On top of that I have previously had Bells Palsy twice over many years and also at times, a very sensitive bladder. He said he suspects MS but I have been referred for another MRI scan with dye this time and also a lumbar puncture which scares me. I feel frightened, relieved, sad...so many different things. I see my Neurologist again in December/January, feels like the longest wait.
Thank you for listening,
I just thought I would share my news I went to see my neuro on Friday and he has told me I have not got MS but I have got severe nerve damage where with MS the myelin is damaged mine is the nerves itself. He told me I will never walk again (which I knew deep down) and my bladder will never work again. I will have times when I am stable and do not deteriorate and times when I am bad. The times when I'm bad whatever damage done will remain but I will then steady out again.
I know its not brilliant news but at least I now know its not in my head and not a functional disorder.
He did tell me to rest and avoid stressful situations which is easier said than done with two young daughters who fight and bicker all the time.
Thank you for listening especially considering I shouldn't be using this site but everyone is so friendly and supportive.
Suzanne x x
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