Hi, I am new to this forum so I do apologise if I have not done this correctly.
I was diagnosed with RRMS last August after first getting Optic Neuritis and then bad legs.
I am a website designer so thankfully I am able to work from home most days and venturing in the office when I am feeling well.
I would say my fatigue is the worst thing, I am sure many of you will agree. I take Amantadine, eat healthy and get lots of sleep but still feel bad. I recently got married in Vegas and it was the first time I felt a lot better, the dry heat I think really helped me.
The recent hot/humid weather in the UK has done the opposite, it has made me spend days in bed and being unable to work.
My wife and I have been thinking whether it maybe a good idea to go abroad for 4/6 months to see how I am. I can still get a works visa for NZ and I am seriously thinking of going to work there and also travel to see how I am.
Has anyone been to Oz/Nz and found that the symptoms have not been as bad?
I know heat is a bad thing, but for some reason I felt great the other month in Vegas, It maybe a holiday/wedding high but clinging on to the thought that dry heat may actually help me.
Any advice/help would be appreciated.
I haven't been diagnosed with MS, recently diagnosed with ME but I like all of you here so I've stayed :-)
Anyway, I have a dreaded work night out tonight. I say dreaded because it's Friday and by now I can just about function. However, having pulled out of various nights out using different excuses, I decided if I went on this one I could get out of a few more to come!
I am so tired and I know I have been out when feeling like this once before and spent the next few weeks going through a really bad patch of tiredness and pain and I got very down.
Anyway, I know I will need to really take it easy after tonight and I am already prepared to maybe take Monday off work so I can recover quicker but does anyone have any tips on how to get through the evening without feeling like talking takes too much effort and you just want to curl up in a ball and sleep?
I am going to try and grab a 20 minute nap when I get home but any tips for feeling a bit brighter?
(I haven't told work about my ME)
Hi everyone - hope you are all surviving!
I am seriously struggling with fatigue at the moment, it's unrelenting, despite napping and pacing myself as much as I can with two young children!
I wondered if anyone had any handy tips to help them cope with the dreaded fatigue? My gp suggested armatindine (sp?), but I don't really want to take more medicine if possible, I already rattle!
Thanks for any help you could offer
I seem to have been getting more and more worn out recently.
I have written to my neurologist and seen my GP about what can be done, what my options were, not of which I do not particularly like the sound of.
Well it seems that the problem was actually the Gabapentin. Stopped taking that and within a day or so I was back to my normal self.
Well sort of.
It was like a veil had been lifted, only problem is I can't sleep now.
Hence the Diazepam.
Also the pain and the spasticity in the legs is back too. Diazepam should help with the later.
It feels like I have just rolled back a year or so.
I'm not sure where I will go now, but to have some energy and not feel drained all the time has to be worth a bit of pain.
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