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Catherine

Brabio

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Catherine

Hello,

I hope all is well with you all and the new year is treating you kindly so far. Do any of you take Brabio? After three years of taking Tecfidera, I'm about to start taking Brabio instead. I will have injections three times a week and can't say I am looking forward to it. I was taking Avonex before Tecfidera, and had hoped that was the end of injecting for me but sadly here I am again. Any advice would be greatly appreciated.

Thank you,

Catherine

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Procrastinating
Stumbler

@Catherine  , Brabio is the generic version of Copaxone, one of the initial Disease Modifying Therapies ( DMTs). So it's been around for 30 years.

 

Going from Tecfidera to Brabio is a bit of a retrospect move in terms of efficacy. There are now many DMDs, so there may be a better, more effective choice available to you. Have a read through this document for details of these choices :-

 

https://support.mstrust.org.uk/file/DMD-Book-Final-WEB.pdf

 

The following website will also help you choose :-

 

 

MS_RGB_col_300px.png
WWW.MSTRUST.ORG.UK

Filter, compare and select treatments for relapsing MS

 

 

:moonieman:


John aka Stumbler (as I do fall over!)

Illegitimi non carborundum

 

"Life is not a journey to the grave with the intention of arriving safely in a pretty and well-preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming... "Wow! What a ride!"

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Catherine

Unfortunately I can no longer take other oral DMT's as I have a low lymphocyte count and problems with my liver. The intravenous therapies are something that may be considered in the future, depending on how things go on Brabio. I am doing fairly well so far, twenty years after my first MS episode - so fingers crossed. I wondered if anyone had personal experience of taking Brabio as the list of possible side-effects don't sound too great. But then none of them do really.

Catherine

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Procrastinating
Stumbler

@Catherine , well, Copaxone was always considered best for side-effects, so I'm sure Brabio will be similar.

 

Injection site reactions seem to be the worst problem, but this can be mitigated by discipline rotation of injection sites. The following Copaxone instructions/advice might be useful :-
 

WWW.COPAXONE.COM

Recommended depth settings, timing, storage and disposal tips.

 

:moonieman:

 


John aka Stumbler (as I do fall over!)

Illegitimi non carborundum

 

"Life is not a journey to the grave with the intention of arriving safely in a pretty and well-preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming... "Wow! What a ride!"

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Catherine

Thanks for this but the drug companies are always going to try and show their drug in a good light. I was hoping someone who takes Brabio might be able to share some first-hand experience and tips. I have found a group on Facebook so hopefully I can find answers there. Thank you again.

Catherine

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Procrastinating
Stumbler

@Catherine , undoubtedly, there are more effective treatments available now, but each treatment has its pros and cons and Brabio is therefore worthy of consideration.

 

I always get concerned when "cheaper" options are offered on a "let's wait and see if you get worse" basis. We don't want to get worse, we just want the best treatment to keep our MS under control. :what:

 

:moonieman:

 


John aka Stumbler (as I do fall over!)

Illegitimi non carborundum

 

"Life is not a journey to the grave with the intention of arriving safely in a pretty and well-preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming... "Wow! What a ride!"

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Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.

If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.

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