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Happymama

Bunged up - a tad graphic perhaps in a TMI way

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Crappy
Happymama

Hi all, since Christmas I've been only been able to go to the loo without a suppository or two dulcolax in the evening.  I get impaction, there is so little movement in my innards these days. I can't feel any of the usual, sometimes weirdly pleasant sensations, or signals that i need to go bar pressure on my now totally fragged anus.  And wind. I've learned how to interpret every single fart, it's meaning by time of day, what I've eaten and how long ago I went.  Lentils promise much (paaaaaarrrrp) but fail to deliver.  My bug guts have been very well looked after, I eat a lot of resistant starch, which they love.  

 

Every day I go sit, hang upside down like a bat, with the New Scientist between my feet an inch from my nose, and chew my knuckles as I try to visualise the drawdown - and wait for the OUCha!  A very obvious tear happening as i feel it leaves the loo looking as if I've been slaughtering pigs.   

 

My GP has asked for a list of my symptoms since the first in Aug 99.  She's going to send it to the neurologist, probably the last one who promised to find out what was wrong with me, and six weeks later some lad the same age as my son was telling me there was nothing wrong with me, so I don't hold out much hope.  I"m ex forces and that apparently might push the timing along a bit.  

 

Should I list the constipation as a symptom?

 

I have had the doubtful delight of an old symptom (electricution) in a new place a week or two ago, my left thigh for a short while.  

 

Is life not so totally wonderful?


Edited by Happymama

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Procrastinating
Stumbler

@Happymama , you should be discussing this problem with your MS Nurse, who should refer you to the continence service.

 

There are the usual solutions, e.g. eat more fibre, drink more water, have your feet raised, etc., but you're probably getting bored of hearing those suggestions.

 

Given the extent of your problems, Anal Irrigation may be a solution. I know, it sounds awful, but awful problems sometimes need awful solutions. And, if it gives you relief......

 

Here's a video about one such system:-

 

WWW.COLOPLAST.CO.UK

Peristeen empties the bowel by introducing water into the bowel using a rectal catheter. Using Peristeen minimises the likelihood of involuntary bowel leakage and/or constipation.

 

However, please note that I am not medical and you should only take advice from your medical specialists.

 

:moonieman:


John aka Stumbler (as I do fall over!)

Illegitimi non carborundum

 

"Life is not a journey to the grave with the intention of arriving safely in a pretty and well-preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming... "Wow! What a ride!"

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Crappy
Happymama

Stumbler, I'm still in Limbo.

 

I've recovered, 8 and a half weeks after succumbing.  I feel very different, and have different noises and wind coming from my innards, and have gone naturally for the first time since just after Christmas.  

 

I eat a LOT of fibre, and drink up to four pots of herbal tea a day - the last one a mild soporific. With three small mugs in each, plus water with two meals.  The fibre is inulin, konjac glugommanan, oat bran, flax seed flakes to put in/on food, plus food such as dates, nuts with skins, lentils and veg unskinned.    This is a left over from my keto diet after Christmas to lose the weight I put on at Christmas. I did lose it, felt amazing on the diet, with cognitive enhancement and more energy but constipation can be a thing with Keto but not with my diet!  So I dropped the keto and still had the very severe constipation.  I feel like I"m passing broken glass and it's only just starting to get better.  I have to take pain killers to sit down after.  I have broken the skin on one knuckle after biting it with the pain of going.  

 

Thank goodness it's over.  I've had other new symptoms too, my right eyelid keeps getting ptosis after a period of twitching.  I've had a super agonising pain in my groin, not an electric shock, just pure white pain.  Pulsing.  

 

So the letter will be at the GPs as soon as the (heavy) snow is cleared.  

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Crappy
Happymama

Forgot also to say that the most effective way I found to take laxatives regularly so as not to damage my food absorption ability was every four days two Dulcolax in the evening with a lot of water, then a suppository in the following morning.  This would sort out the top and the bottom, so to speak although after half an hour the suppository often didn't do as well as it should have - and I'd be passing something too big to pass unless you're a horse still.  OUCHa.  

 

Not for long term.  Lactulose will become my best friend (yuck yuck yuck, had it when PG with the twins, so full of Relaxin hormones I was I started to fall to bits).  

 

 

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Procrastinating
Stumbler

@Happymama  , I'm glad you put that last sentence on your penultimate post because it cannot be healthy going through what you're going through.

 

Please update this thread when you hear from them.

 

:moonieman:


John aka Stumbler (as I do fall over!)

Illegitimi non carborundum

 

"Life is not a journey to the grave with the intention of arriving safely in a pretty and well-preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming... "Wow! What a ride!"

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Crappy
Happymama

The recovery was a false one.  

 

Hooray it's over!  Five months of OUCH every time I go, but now it's ouch.  No more Two laxatives every five days.   However, when I eat pork and chicken I now get the familiar churning as my body says 'oy, this is not allowed, it's a problem' after it's learned that they are from food eaten in the past that didn't agree with me.  So nice to get that back.  Not felt such things since just after Christmas.  Mind you the gas I've produced today after last nights sweet & sour pork with rice is probably enough to power the heating of a large town.  

 

I have lactulose and had 30mg this morning to make sure.  

 

Neuro appt, if all the planets align, on 3 September.  


Edited by Happymama

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Procrastinating
Stumbler

@Happymama , well, I'm glad everything is moving in the right direction for you.

 

:moonieman:


John aka Stumbler (as I do fall over!)

Illegitimi non carborundum

 

"Life is not a journey to the grave with the intention of arriving safely in a pretty and well-preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming... "Wow! What a ride!"

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