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eliza

Quiet?

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eliza

It seems to be a very quiet board up to how it used to be. 

Maybe there is less people with MS:nurse2:or meds working well?

 

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Crappy
Marina

There are apparently more people with MS these days...

 

map.png
WWW.MSTRUST.ORG.UK

20% rise in the estimated number of people living with MS in the UK

 

But, yes, sadly the forum has become quite a bit quieter these days. A lot of people like using Facebook groups instead (not me, though, can't stand Facebook!), so I suspect that's where quite a few MSers flew off to and is maybe the first place MS newbies go to.

 

The forum is a bit like the saying about our bodies: "Use it or lose it"... As some people still use the forum, even if only to lurk or to read other parts of it, we haven't lost it yet! :hoop:

 

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Marina

(belated DX in June '05, SPMS)

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Michelle7070

Hi Marina,

 

Facebook is so public, where this feels a more intimate place to discuss and read issues to do with MS, I am grateful that the forum is still here, it gives me a real sense of assurance that there are like minded people to read about.

Michelle

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Crappy
Marina

I could write reams about Facebook vs forums, and previously made a number of points about FB in this older topic about the forum having become quiet:

 

 

Whilst a number of people have left FB in the past 2-3 years due to privacy issues, not everyone necessarily knows that forums (still) exist or even what a forum is (or "community" as they're now sometimes also called). Forums were where people went before FB became so popular took over the internet or before FB had "groups". People also have to have been on the internet long enough, or not be glued to FB only, to remember or know what forums are...


Marina

(belated DX in June '05, SPMS)

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Crappy
Marina

On the subject of how many people there are with MS, I've always been a bit sceptical about the numbers (in the UK). When this forum first started, it was 80,000, then increased to 100,000 and has now recently again increased to 120,000. I always used to think it has to be more that that, as so many people I know or meet know someone who has MS. 

 

If the population of the UK is around 66.5 million, it would mean approximately 1 in 550 people have MS (if my maths are right). That doesn't fit at all, percentage-wise, with the amount of people who've told me they know someone with MS, and it's certainly more than 0.20%!


Marina

(belated DX in June '05, SPMS)

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