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Hi all,

I haven't posted since I had questions about the Ocrevus treatment and my fears about having it, I am pleased to say that I am still up and about.


I had the first dose (split into 2 sessions) in November, which I was very fearful about, I had even written goodbye letters to my family members in case I didn't get through it, probably a bit dramatic, but I was so fearful about it.  My children are in their late teens, so although I had a conversation with them before beginning the treatment, I wanted to make sure that I had said everything.


While the trip into London for me to have the treatment was draining, having the actual treatment was fine and I felt very confident in the team that were looking after me. 


I can't say that I had experience some miraculous event where my symptoms suddenly disappeared, but it is just supposed to limit the number of relapses.  I probably wont know if that has happened or whether it would have eased a little on its own but  I have experienced several new symptoms, some more irritating than others.


I suppose the reason I am writing this is to write what I am feeling rather than let it manifest in my head, apologies if I should have put this somewhere else.

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@Michelle7070 , it's a good strategy to write your concerns/feelings down. It gets these things off your chest, as a problem shared really is a problem halved.


I'm glad the Ocrevus treatment went well. Your preparations, were pretty comprehensive but this provided a level of comfort to allow you to proceed.


You're right about the treatment primarily being an investment in your future. But, it's early days and I believe your first infusions are half dose. And we've just got over Xmas and the post Xmas credit card bill, so a potentially stressful time, especially for the female of our species. Now's the time to relax and wait for Spring to arrive. Things will hopefully get better for you. Well, improve anyway.



John aka Stumbler (as I do fall over!)

Illegitimi non carborundum


"Life is not a journey to the grave with the intention of arriving safely in a pretty and well-preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming... "Wow! What a ride!"

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