Firstly, thanks to all who read/posted on my first topic, very much appreciated.
Anyway, just before xmas i had my 1st real diagnosed relapse. Twas not a pleasant experience, but, i was given a massive course of steroids for five days and told i would be fine. Somewhere around mid Jan i seemed to be doing better, however i have slowly deteriorated again, in my opinion, (and my wife's, who has been telling me for last week or more i was heading for another relapse :( Mega scary.... ).
Do any of you have pain and discomfort walking on a daily basis? My legs almost gave out onme while in tesco with my daughter earlier, it was a shock for me and i am now unsure of what to do now?
When do you decide to use a wheelchair? I mean i can walk, (slowly stumble i think is a more accurate description), but, only a very short distance totally wipes me out? I end up puffing and huffing like iv run a race. I have been getting my words all jumbled up again and my speech is affected again, (my mum told meon fone earlier).
I have just finished a course of antibiotics so it not an infection. I have pushed myself a little bit but i am used to being a hundred mile an hour person.... (well, i used to be....). I actually rang my ms nurse and asked her advice. Should i use a wheelchair, walking sticks, etc and explained i dont know if or when i need them? When should i decide to use them, etc. She said they will assess me when i go in for my next hosp appt at end of feb. But, after what happened today? It's laughably, as i was stumbling through the shop trying to keep up with my 8 yr old daughter i was thinking, "i can see why sticks would be of use to me now". Doh! Too late... two minutes later i said to the lady in tesco, "i need to sit down", and just plonked myself down next to her counter. If i hadnt sat on that counter id have hit the floor.That was a first for me... I asked my daughter if i had embarassed her and she said no, so that was ok, but i almost cried, sat there with all these people fussing me. I felt.... I dont know how i felt but i wanted to cry... Im finding it a bit wierd lately, i thought i would be fine, but i seem to be back where i was just before my relapse?.
So, sorry for rambling on, but, is this life now? I mean i try to do something, anything, and after only a small ammount of effort im totally wiped out. My legs are uncomfortable and unsteady to walk on, i get all jumbled up in my head if put under any sort of pressure, (you should hear meon the phone with anyone official... Phew... its odd). I often feel slightly giddy and unsteady? Sometimes, even just turning my head to look at someone talking is odd because i turn to look at them and it feels like my brain slowly catches up in slow-mo, its odd.... I just feel like im falling apart? My ms nurse said because im coming out of a relapse and that i had a quote "major infection", (suspected urinry infection), that i should just give myself time to recover and all would be well. I must say i have major doubts.
Please tell me what "normal" life feels like with ms cos im dumbfounded.....
I am a 21 year old sufferer of M.S and I am running a half Marathon and a Marathon this year to raise vital funds.
Two weeks ago I ran the Inverness Half Marathon and in October I am running the Loch Ness Marathon.
Please click the link to read my story and, if you wish, to donate. Please feel free to share the link if you would like.
Any help would be really appreciated.
Thank you very much
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