Advice for people with MS and the use of DMDs:
COVID-19 and DMTs – Multiple Sclerosis Research Blog
The coronavirus/COVID-19 pandemic is getting people with MS (pwMS) who are on a DMT to rightly question whether or not their immune systems are competent to deal with a COVID-19...
There are also other articles about COVID-19 on the MS Research Blog.
This is a map that tracks the virus around the world, and has plenty of stats:
Operations Dashboard for ArcGIS
General advice from the NHS:
Coronavirus (COVID-19) - NHS
NHS advice about coronavirus (COVID-19), including what the risk in the UK is, what the symptoms are and how to reduce your chances of getting it.
The Benefits and Work website has a page listing changes to PIP, ESA, UC and DLA. There’s also a FAQs section at the bottom of the page, made up of queries sent to them about benefits.
Get the benefits you're entitled to: help with employment and support allowance (ESA), personal independence payment (PIP), universal credit (UC), disability living allowance (DLA). Claims...
Some of the best information about MS and the coronavirus, especially if you’re on a DMD, comes straight from the horse’s mouth by Professor Gavin Giovannoni and his team at the Barts MS Research Blog. Comments in articles can also be informative. Please check it regularly as advice may alter from day to day.
Multiple Sclerosis Research Blog – A blog for people affected by Multiple Sclerosis. Interpreting good, bad and other research news
A blog for people affected by Multiple Sclerosis. Interpreting good, bad and other research news
The Barts MS Research Blog has also started what they call a “micro site”, which specifically deals with COVID-19 and has a Question and Answers section:
MS-Selfie - COVID-19 & MS
Last week I had a review at the MS nurse led clinic and yesterday I received a copy of her letter to my GP.
The nurse considers that I have experienced some exacerbations (last month) due to a UTI and the current hot and humid weather conditions and no definite relapses of my MS, which has remined stable.
I can contact the MS nurses at any time for them to make arrangements for me to start DMT. I have an appointment in twelve months at the MS nurse's clinic and was due to see the neurologist in a year only if I take the drugs. In the meantime, I have the opportunity to attend a fatique management workshop in September.
However, my condition doesn't feel stable and I know I'm certainly not the same as last year. The fatigue I feel is not just that of a normal middle-aged woman and I can't put all my symptoms down to other causes as I did even last year. Still I look well or so I'm told and I tire myself more out trying to hide my condition to the outside world.
Although my nurse is certainly not high on empathy, she does appear to have listened to what I told her and answered some direct questions. When I told her what I understood about DMT, she confirmed what I said was correct. However, I think I really need to improve my communication skills, as she appears to think I've cut down my working hours when I'm just spreading them more evenly over my three days as I no longer have to work a long day into the evening, which is good.
As you can tell, I've rather lost the plot here. I'm sorry. I just needed to talk.
The uncertainty of having MS feels quite pernicious some days. Yesterday I was very perky.
Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.
If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.
The atmosphere is friendly whilst being compassionate, supportive and caring. Members also post about a variety of subjects not related to MS, as well as share jokes, talk about their hobbies, have fun, and more.
The MS People Forum is not responsible for advice or information supplied by members. We suggest you seek medical advice before trying anything.