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Marina

Coronavirus - All MSers are considered “vulnerable”

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Crappy
Marina

MS is officially listed as one the of “vulnerable” conditions for the coronavirus (COVID-19)- regardless of whether we’re on a DMD or not - which means we should follow the advice for social distancing, and which the government link below says “is likely to be in place for some weeks” or which they said on TV would be 12 weeks...

 

 

Stay safe everybody!

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Marina

(belated DX in June '05, SPMS)

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Depressed
Eastendgirl

Thanks for that Marina. Previous understanding was that people with MS were only considered vulnerable if they were on DMD's. It's good to have further clarification, albeit a bit worrying. 

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Nick

Good clear advice and thanks for posting it Marina. 

Of course it is a bit worrying but you can only do your best.  

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Just another Warrior...........

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Crappy
Marina

Just to try to clarify further. There are two aspects for MSers and the coronavirus:

 

1/ The term "vulnerable". This to do with what restrictions etc the government puts in place. If you're 60+ yrs-old, or younger with one of the conditions listed in the link posted above, you are therefore entitled to an annual flu jab - which is what puts you in the "vulnerable" group.

 

2/ DMDs. If you're on a DMD, you may have a higher risk of catching the virus and/or of having more serious effects from it, depending on which DMD you're on. The link in the post below goes to a PDF from the Association of British Neurologists, which lists which DMDs may affect you:

 

 


Marina

(belated DX in June '05, SPMS)

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Nick

For those of us NOT on DMD's I thought the symptoms of pseudo exacerbation was a most interesting previous reference.  It's the thing I'm kind of dreading.

It is a difficult time but the more you know the better prepared you can be. It is only a few years ago when such things happened with no warning. Our generation in Western Europe have never experienced such uncertainty. 


Just another Warrior...........

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Crappy
Marina
10 minutes ago, Nick said:

the symptoms of pseudo exacerbation was a most interesting previous reference.

For anybody interested in the "previous reference", @Stumbler posted it here:

 

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Marina

(belated DX in June '05, SPMS)

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Crappy
Marina

The government couldn't be more confusing even if they tried... There's "vulnerable", which applies to all MSers; and there's now "extremely vulnerable", which doesn't apply to all MSers:

 

 

It's the "extremely vulnerable" who are the 1.5 million who'll be receiving letters advising them to "shield" themselves for 12 weeks:

Quote

stay at home at all times and avoid any face-to-face contact

The "vulnerable" (eg, not "extremely") are advised to be "particularly stringent" with social distancing for "some weeks", as per the link at the top of this topic:

Quote

significantly limit your face-to-face interaction with friends and family if possible

 


Marina

(belated DX in June '05, SPMS)

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Nick

Good point Marina,

Ive just been trying to decipher this myself. I take it that those with MS who are using DMD's are in the "extremely" category, and those of us who aren't will be "vulnerable"  but of course that is only my assumption based on what I have read. To be fair the government is running with maximum force at all this so there will be loads of things which will be unclear.  


Just another Warrior...........

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Crappy
Marina

I don't think MSers who are on DMDs are in the "extremely vulnerable" group, Nick, it probably depends on which DMD they're on. It would be best for MSers to check the links to the Barts MS Research Blog in this linked topic, including the one to their new Coronavirus Q+A site, as I think the opinions on which DMDs might be OK or not keeps changing:

 

 

Yes, those of us who aren't "extremely vulnerable" are still "vulnerable" and the advice is still to "stay home" (according to the statements in this evening's PM's news briefing). That's partly where the confusion lies, as both groups are advised to stay home, (or "self-isolate" or however you want to phrase it). The "extremely vulnerable" group will be receiving a package of additional help and will have community "hubs" for extra help, etc.

 

There is definitely still a lot that's unclear when it comes to the "vulnerable"... which, unfortunately, only risks creating more anxiety.

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Marina

(belated DX in June '05, SPMS)

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