Jump to content
The MS PEOPLE UK Forum
Support, help, advice and information for Multiple Sclerosis. Ask questions and share experiences with people affected by MS.
Donaya

PIP Tribunal Success

13 posts in this topic Last Reply

Recommended Posts

Donaya

Hi all, if you were refused PIP by DWP and have not appealed i urge you to do so as MS is a life changing disease. 

I applied June 2019 then appealed, last year Oct following my face to face assessment Sept. This was refused, i then appealed by Tribunal which took place July 2020 via telephone. A Doctor, Judge and a representative from DWP asked questions based on the what was reported up until the date of assessment (sept 2019) they did not want to hear about now. 

Anyway, this was not a scary experience. In fact it was easier than the DWP assessment, they wanted to hear how the RRMS impacts on my day to day life. 

The decision was upheld and i was awared PIP standard rate. 

4x 2 points awared and 4 points awared fot mobility.  Interestingly DWP scored me ZERO in all areas!!! I will be back dated from june 2019 and entitled to PIP until june 2022. 

 

Be brave, fear nothing and make sure you stand up for MS by claming what you are entitled to. Do not be put off by a Tribunal. My opinion is DWP have no idea what they are assessing with MS, lack understanding to the hidden yet highly self limiting symptoms that do not fit nicely into their generalised tick box questions. DWP are likely to score people with ZERO like me, dont be put off... appeal with a smile! Surely living with MS is far harder than anything a Tribunal can throw at you. Good luck all. 

  • Thanks 2

Share this post


Link to post
Procrastinating
Stumbler

@Donaya , thanks for sharing this with us.

 

You're right, the more success stories are posted on the internet generally, the more people will be encouraged.  And we can build up a critical mass mass, which will hopefully start to educate the DWP and the Assessors.

 

We can but hope.

 

:moonieman:

  • Like 1

John aka Stumbler (as I do fall over!)

Illegitimi non carborundum

 

"Life is not a journey to the grave with the intention of arriving safely in a pretty and well-preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming... "Wow! What a ride!"

Share this post


Link to post
Donaya

@Stumbler

Stumbler! Good name, I guess my name would be Dory from the film Finding Nemo... atrocious memory at times oh and a hand that likes to be independent! 

 

Most certainly people with MS must be their own advocates and not stop until they have the outcome they are entitled to.  If we do not make a fuss it will continue, from my experience the DWP assessors not only aim to fit your responses to their tick boxes, they have the audacity to make assumptions based on the person they see before them not by what is reported to themin terms of difficulties and the impact on day to day functioning. For example i do not fit physical characteristics of what one may visually perceive as disabled. However it is the disabling symptoms that cannot be seen that cause me the most difficulties, unfortunately such symptoms do not fit the DWP framwork of assessment. 

 

As evidenced in reserach the majority of PIP Tribunals are upheld.  What is needed is competent and knowledgeable professionals who understand MS in its entirety, along with the varied disabling symptoms we experience that have a unique cluster for us all. 

 

The joys! 

 

  • Like 2

Share this post


Link to post
Procrastinating
Stumbler

@Donaya . You're up in Essex. That used to be my old "stomping ground". I got out of London as far as Ilford, until I cut the London ties and moved down to the South Coast.

 

:moonieman:


John aka Stumbler (as I do fall over!)

Illegitimi non carborundum

 

"Life is not a journey to the grave with the intention of arriving safely in a pretty and well-preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming... "Wow! What a ride!"

Share this post


Link to post
Donaya

@Stumbler Small world, Ilford was my stomping ground given i lived there for 25 years! 

Enjoy the day :@)

  • Like 1

Share this post


Link to post
Procrastinating
Stumbler

@Donaya , I probably "stomped" a few years before you got round to your "stomping"! :lol4: :elephant:

 

Take care

 

:moonieman:


John aka Stumbler (as I do fall over!)

Illegitimi non carborundum

 

"Life is not a journey to the grave with the intention of arriving safely in a pretty and well-preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming... "Wow! What a ride!"

Share this post


Link to post
Donaya
  • Funny HaHa 1

Share this post


Link to post
Procrastinating
Stumbler

@Donaya , is Donaya your name? It's very unusual and pretty, x

 

:moonieman:


John aka Stumbler (as I do fall over!)

Illegitimi non carborundum

 

"Life is not a journey to the grave with the intention of arriving safely in a pretty and well-preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming... "Wow! What a ride!"

Share this post


Link to post
Donaya

@Stumbler  forgive me for delayed response MS and heat = crazy brain fog and word searachsearching for me! Prob don't help having a newborn. Donaya is a combination of names, its not my name though but thank you for the lovely complement. On looking at that name, i agree its kind of fabulous lol. Was just looking into to weather changes and impact on MS. The past few days the heat has been ridiculous and ive noticed i feel somewhat MS-y. Good news i can see the lightning attempting to say hello! 

Share this post


Link to post
Procrastinating
Stumbler

@Donaya , yes, MS and heat is not a good combination. Ask Uhthoff all about it, https://www.mstrust.org.uk/a-z/uhthoffs-phenomenon .

 

Aw, a newborn. That can't be easy, due to the above. You got your priorities right by postponing your response to a more suitable hour.

 

Ha, Donaya, a combination of names. Well, Donald Yasmin, it's a pleasure to meet you. :lolbash:

 

Take care and look after yourself and the babe. x

 

:moonieman:


John aka Stumbler (as I do fall over!)

Illegitimi non carborundum

 

"Life is not a journey to the grave with the intention of arriving safely in a pretty and well-preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming... "Wow! What a ride!"

Share this post


Link to post
Donaya

@Stumbler you are a funny man lol. Baby is easy other than the 23.30 until 01.30 colic hours. As long as i get 7 hours sleep im okay, cannot afford to be sleep deprived with MS as mine plays up = sound like I've been to the pub! Cooler day today whooop whoop! I got my PIP letter just now, back dated payment to be paid to me just under £3.5k so today the sun is shinning inside for me although raining outside. Enjoy the day 😇 

Share this post


Link to post
Procrastinating
Stumbler

@Donaya£3.5k is a nice way of making the sun shine. Methinks that baby will get spoiled.

 

Stay safe and take care. :flowers2: xxx

 

:moonieman:


John aka Stumbler (as I do fall over!)

Illegitimi non carborundum

 

"Life is not a journey to the grave with the intention of arriving safely in a pretty and well-preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming... "Wow! What a ride!"

Share this post


Link to post
Donaya

@Stumbler  she would do if it wasn't  for her 19 year old sister 🤐. So ive worked out my bedtime is now 2am lol, i was worried that my MSy ways would impact onme if sleep deprived, so far so good!  MS flares more likely after birth hopefully i will continue to be okay. Wonder if i would be able to manage a night out clubbing 🤣 Nighteo Stumbler😇

Share this post


Link to post

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Similar Topics

    • Success in UK stem cell treatment

      This looks very encouraging indeed !   http://www.bbc.co.uk/news/health-35065905   Panorama episode concerning this looks like it's on ...   Can You Stop My Multiple Sclerosis? Panorama will be shown on BBC One on Monday 18 January at 8.30pm.   Scully

      in General Discussion about MS

    • DLA Tribunal

      Hello all. Hope you are all feeling good today. I am having to go to a tribunal, for DLA. This was turned down, on the grounds that although I need help with cooking, cleaning and mobility, it isn't going to last for 9 months. So to all sufferers of CIS/MS, ATOS reckon you'll get better ( couldn't find a dickhead smiley, sorry). Wish this was true. Anyway, they sent out their own Dr, who decided to prod me with various sticks, making all my senses jump through the roof, due to the heightened sensitivity. And after much swearing and cursing at him, he left. (still no dickhead smiley) I had planned to represent myself, at the tribunal, but I have many people (including the local council) advising me not to, as the tribunals are not neutral and filled with ATOS doctors. I thought they would be neutral, like an employment tribunal. Did loads of those, many years ago, representing many good (and some, just right idiots lol) people I'm hoping that someone has been through one of these things (and won), who can advise me if it is better with a rep or not. Think the term 'Drs Practice' sums up this ATOS company, as without a hellova lot more practice, you wouldn't want them near you.   Thanks for taking the time to read this. All the best. Dewi. X

      in General Discussion about MS

    • success

      op was a success, am back home now in lots of pain now its a 6 week wait to see if i need same op on other knee

      in General Discussion about MS

    • Could you afford a CCSVI Success?

      Now, this latest perspective on a quasi-cure/recovery brings up a new perspective, following Ms Wiggle's recent post in the main CCSVI thread - http://ms-people.com/forum/index.php?s=&am...ost&p=60497.   How many of us, who have had their lifes blighted in middle age or younger, could rebuild their career to accommodate the drop in income, if your benefits were stopped?   For, my part, I'm in my mid-50s and was allowed to retire early. So I have a private pension income, supplemented by the DLA. I'm comfortable in that I can pay all the bills and my wife works.   But, if I was miraculously more mobile, less-fatigued and continent, what would I do? I suppose B&Q might take me! But, I would now want to do more, see more and probably wouldn't be able to afford it!   So, here we have a scenario, we could find ourselves in a worse financial state, due to losing years of your career/pension contributions to MS. And we would then be destined to live the rest of our lives living hand to mouth!   And, we may have spent some of our retirement reserve to pay for this treatment, to benefit yourself. And to benefit the Government, who didn't really help you in the first place!   So, whilst a cure, or a physical recovery would be welcome, what would it mean? Could we recover, or more importantly finance, our restored life?   Discuss.

      in General Discussion about MS

    • Tribunal

      Hi, I got my tribunal hearing tomoz for DLA, anyone got any tips etc cos obviously I'm tryin to screw the system and don't really deserve it cos I only have MS, I mean its not like I struggle walking etc!!!!!   WTF do we have to go down on bended knees (excuse the pun) and beg for this?? My case has been goin on since last June and has finally reached a tribunal. Bugger, if this isn't hard enough to bloody cope with without havin to convince some bloody panel that Ive got what I've got even tho the medics have told them??   AARRRRRRRGGGGGGGGGGGGGGHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHhhhh   Thanks ;)

      in General Discussion about MS

About Us

Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.

If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.

The atmosphere is friendly whilst being compassionate, supportive and caring. Members also post about a variety of subjects not related to MS, as well as share jokes, talk about their hobbies, have fun, and more.


The MS People Forum is not responsible for advice or information supplied by members. We suggest you seek medical advice before trying anything.
×