This looks very encouraging indeed !
http://www.bbc.co.uk/news/health-35065905
Panorama episode concerning this looks like it's on ...
Can You Stop My Multiple Sclerosis? Panorama will be shown on BBC One on Monday 18 January at 8.30pm.
Scully
Hello all.
Hope you are all feeling good today.
I am having to go to a tribunal, for DLA. This was turned down, on the grounds that although I need help with cooking, cleaning and mobility, it isn't going to last for 9 months.
So to all sufferers of CIS/MS, ATOS reckon you'll get better ( couldn't find a dickhead smiley, sorry). Wish this was true.
Anyway, they sent out their own Dr, who decided to prod me with various sticks, making all my senses jump through the roof, due to the heightened sensitivity. And after much swearing and cursing at him, he left. (still no dickhead smiley)
I had planned to represent myself, at the tribunal, but I have many people (including the local council) advising me not to, as the tribunals are not neutral and filled with ATOS doctors. I thought they would be neutral, like an employment tribunal.
Did loads of those, many years ago, representing many good (and some, just right idiots lol) people
I'm hoping that someone has been through one of these things (and won), who can advise me if it is better with a rep or not.
Think the term 'Drs Practice' sums up this ATOS company, as without a hellova lot more practice, you wouldn't want them near you.
Thanks for taking the time to read this.
All the best.
Dewi.
X
Now, this latest perspective on a quasi-cure/recovery brings up a new perspective, following Ms Wiggle's recent post in the main CCSVI thread - http://ms-people.com/forum/index.php?s=&am...ost&p=60497.
How many of us, who have had their lifes blighted in middle age or younger, could rebuild their career to accommodate the drop in income, if your benefits were stopped?
For, my part, I'm in my mid-50s and was allowed to retire early. So I have a private pension income, supplemented by the DLA. I'm comfortable in that I can pay all the bills and my wife works.
But, if I was miraculously more mobile, less-fatigued and continent, what would I do? I suppose B&Q might take me! But, I would now want to do more, see more and probably wouldn't be able to afford it!
So, here we have a scenario, we could find ourselves in a worse financial state, due to losing years of your career/pension contributions to MS. And we would then be destined to live the rest of our lives living hand to mouth!
And, we may have spent some of our retirement reserve to pay for this treatment, to benefit yourself. And to benefit the Government, who didn't really help you in the first place!
So, whilst a cure, or a physical recovery would be welcome, what would it mean? Could we recover, or more importantly finance, our restored life?
Discuss.
Hi, I got my tribunal hearing tomoz for DLA, anyone got any tips etc cos obviously I'm tryin to screw the system and don't really deserve it cos I only have MS, I mean its not like I struggle walking etc!!!!!
WTF do we have to go down on bended knees (excuse the pun) and beg for this?? My case has been goin on since last June and has finally reached a tribunal. Bugger, if this isn't hard enough to bloody cope with without havin to convince some bloody panel that Ive got what I've got even tho the medics have told them??
AARRRRRRRGGGGGGGGGGGGGGHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHhhhh
Thanks ;)
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