Jump to content
The MS PEOPLE UK Forum
Support, help, advice and information for Multiple Sclerosis. Ask questions and share experiences with people affected by MS.
Allycat

Changing from Tecfidera

7 posts in this topic Last Reply

Recommended Posts

Allycat

Hi, I’ve been on Tecfidera for around 3 years and cope well other than a post nasal drip I get each month for about 10 days causing an irritating cough, runny nose & lost sleep. Tried all nasal sprays, antihistamine & been checked out by ENT specialist (camera up nose) all to no avail. So I’ve now decided to try another DMT but not sure on which one to go with. They all seem much the same, but I don’t want a one that gives hair loss, weight or that you need to avoid alcohol. MS nurse was suggesting injectables and mentioned Plegriy . Any recommendations or one to avoid? 
Thanks.

Share this post


Link to post
Procrastinating
Stumbler

@Allycat , your MS Nurse has suggested a DMT which is less efficient than your present one!

There are now quite a range of DMTs now available. Current thinking is to hit MS hard'n'fast with the most efficient DMT, to minimise any damage. Check out the following website to see what's available and what's most efficient. Ocrevus seems to be the drug of choice at present.

https://www.mstrust.org.uk/about-ms/ms-treatments/ms-decisions-aid

 

:moonieman:


John aka Stumbler (as I do fall over!)

Illegitimi non carborundum

 

"Life is not a journey to the grave with the intention of arriving safely in a pretty and well-preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming... "Wow! What a ride!"

Share this post


Link to post
Allycat

Thanks yes  I understand it’s less effective, I chose Tecfidera for that very reason but if it’s not agreeing with me I needed to consider changing. MS nurse referred to the MS Trust booklet with the fold out chart of drugs and said any of them were suitable for my MS other than Gilenya, Tysabri & Lemtrada which are for more active MS. My MS luckily seems to be less active, only 2 relapses that I’m aware of 

Share this post


Link to post
Procrastinating
Stumbler

@Allycat , the problem is that MS is unpredictable. It's also a progressive and degenerative condition, which is why we need to do anything we can to stop, or slowdown the rate of progression.

 

You also need to consider the delivery process, injection, oral or infusion and the frequency to see how it fits with your lifestyle.

 

It is down to you to do your research and find reasons for you particular choice. After all, it's your body that is receiving this DMT!

:moonieman:


John aka Stumbler (as I do fall over!)

Illegitimi non carborundum

 

"Life is not a journey to the grave with the intention of arriving safely in a pretty and well-preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming... "Wow! What a ride!"

Share this post


Link to post
Allycat

Thanks John.

 

Anyone out there on any of the injections, how are u finding it? Any one on Plegridy, how are you finding it? Thanks 

Share this post


Link to post
Procrastinating
Stumbler

@Allycat , the Forum has been going through an exceptionally quiet time as of late. I hope you get a response, but.......

 

:moonieman:


John aka Stumbler (as I do fall over!)

Illegitimi non carborundum

 

"Life is not a journey to the grave with the intention of arriving safely in a pretty and well-preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming... "Wow! What a ride!"

Share this post


Link to post
Crappy
Marina

Hi Allycat and welcome :flowerface:

 

We’re somewhat quieter as a forum than we used to be, so replies may not be as many as they used to be... however, if you put the name of the DMD you might be interested in into the search box, you might find a few topics about the various treatments. For example, this one on Plegridy:

 

 

Additionally, when in a topic, you can also scroll to the bottom of it and there might be links to similar topics (eg, on the same subject as the topic title).

 

  • Like 1

Marina

(belated DX in June '05, SPMS)

Share this post


Link to post

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

About Us

Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.

If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.

The atmosphere is friendly whilst being compassionate, supportive and caring. Members also post about a variety of subjects not related to MS, as well as share jokes, talk about their hobbies, have fun, and more.


The MS People Forum is not responsible for advice or information supplied by members. We suggest you seek medical advice before trying anything.
×