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Craig M

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Craig M

Hi.....I'm Craig, 51 and newly diagnosed by MRI.

I'm here because I'm frightened.

I have no idea what to expect, at what stage i am and the thought of a lumbarpuncture scares the crap out of me....it just wont happen.

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Procrastinating
Stumbler

Welcome @Craig M . It's natural to be frightened. Everyone is frightened of the unknown. Education is the antidote and that's a process you've started by being here. So, sit down, put your feet up and breath.......

 

If you have a formal diagnosis, you should have been advised about your MS Nurse. They're a Specialist Nurse, who just deal with MS patients. They should be arranging to introduce themselves personally at which stage, they can answer all your questions and try to allay your fears. They will become your best friend and be your first point of contact for all things MS.

You can do your bit too, by doing your own research. Just avoid Dr Google, he can find all manner of horror stories, which are usually out of context. So, stick with creditable websites like the MS Society and MS Trust. There's some good reading material under the "Newly Diagnosed" filter here :-

 

 

SHOP.MSTRUST.ORG.UK

Our wide range of free publications and information sheets cover everything from diagnosis and symptoms to living with MS and treatments.

 

The Lumber Puncture is a scary procedure. The thought of it is more scary than the actual procedure itself. Just follow the guidance offered, especially the recovery advice.

 

So, take your time and relax, this isn't a race. Yes, the future's unknown, but it was before so nothing's changed. I've had MS symptoms which started 35 years ago and I'm still here. You will benefit from the quantum leaps made by medical science over the last 10 to 20 years.

 

Any questions, fire away.

 

:moonieman:

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John aka Stumbler (as I do fall over!)

Illegitimi non carborundum

 

"Life is not a journey to the grave with the intention of arriving safely in a pretty and well-preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming... "Wow! What a ride!"

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Nick

Hi Craig,

 

There are some very knowledgeable people here. The forum has been quiet, but don't let that deceive you, its a very useful place indeed!! 

John has covered most things.  MS is complicated and we have all had to discover our own capabilities and limitations.  This takes time and is difficult for others to understand.  Don't assume the worst, avoid Dr Google, and do ask your neurologist questions.   Above all take one thing at a time, and while this is an extremely stressful time, it is important to understand that stress often affects MS and is something we have also had to learn to avoid. 

MS affects us all differently, its a wide ranging condition and is something you learn to live with.

 

Nick

 

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Just another Warrior...........

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About Us

Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.

If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.

The atmosphere is friendly whilst being compassionate, supportive and caring. Members also post about a variety of subjects not related to MS, as well as share jokes, talk about their hobbies, have fun, and more.


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