Have i turned into somekind of monster..or what??
I am more than aware of the past few months, and yes i have been in a mess, but avoiding me,being embarrassed to talk to me, not making conversation will do nothing to help!
Or am i being selfish?
I am still me, warts and all, i won't break down or hurt you if you speak to me.
What is this "british" thing of ....if we don't mention it, it's not real!!
Do any of you find this in life or am i being over-sensitive?
Cazza x
Hi Everyone so i have spent most of the day today crying! I am having a bad day as i have a cold so i was having a duvet day!! When i was rudely awoken by a letter being delivered from the DWP. When i opened it i was upset to see they are investigating me for fraud!!! So as you can imagine i was shocked and got straight on the phone. The man on the other end told me that as i get high mobility it means i am unable to walk i told him yes on some days thats correct but on a better day i can walk ok he told me yes i know as we have videoed you walking your rather large dogs!! I told him yes i walk the dogs on my better days as the Nuero told me its the best thing to do to keep my muscle tone i also told him but after did you video me retiring to my bed for the rest of the day because i was out of energy? He has told me i have to attend an interveiw next week where he will tell me all the evidence against me! i have been in touch with my MS nurse who thinks this is ridiculous! At the end of the day i am being penalised because i choose to fight this shitty illness and keep going! And if i chose to give in and let it take me i would be rewarded! I am not going to give in to MS ever and if that means im a bad person then tuff! When i feel ok i do walk my dogs and go out of the house as when i feel bad i stay home and the dogs understand that mummy cant walk them that day and they are quite happy to run around the gardens. He even had the cheek to say that when he delivered the letter the dogs didnt bark i told him yes because they were in the dinning room with the blinds closed so they wouldnt wake me! i think he was trying to say i was out walking them. I know quite a few people who are fudging the system when they are fit and well and if i had a chance to be fit and well id rather be that than have to claim government money because somedays im so debillitated by this shit illness that i cant even get out of bed!! Rant over lol I just feel so sad just now!
Hi everyone,
Wanted some advice, I woke up this morning with what feels like a numb neck and chest. I can still feel it, but it feels really strange. I also seem to have this really bizarre stabbing pain (like I have pulled a muscle) at the top of my left thigh when I walk.
Earlier this week my mouth felt numb and I had burning pains in my head. Do you think this is an escalation of that.
I am seeing the Neuro a week on Monday, as my MRI and blood tests have come through, so can have a word with him. Just wanted some advice, as this feels just horrible.
Thanks.
Kazzy
Hi everyone
I woke up this morning feeling like i have been run over....one side of my face is all tingly sensation and i have a small coldsore on my lip..
My right leg is in bits... horrid sensations from burning to loss of sensation... my feet feel horrible too....so yuk i cant put my trainers on etc.
My left leg is more the same but not as bad as the right..... I was fine yesterday....it has just come so sudden....also the fatigue has come too..
I feel gutted and so upset about it.... I always get so upset..... when it comes...
You would think by now i would be used to it coming but i get really scared.. as to how long will it last how bad will it get?? etc
I have just gone back to work after being off for 2wks with flu.... i couldnt go anywhere today only to the sofa... I hope it goes soon...
Maybe the stress of Conor's dad being so ill last week has flared it all up... it really hurts walking even to just the kitchen...
Will rest up and do nothing again and hope it passes.... Soon i hope.. Sorry for being such a Misery Guts..
Love Linda xx
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