Jump to content
Support, help, advice and information for Multiple Sclerosis. Ask questions and share experiences with people affected by MS.

Hi, am new to this site and looking for support

2 posts in this topic Last Reply

Recommended Posts


Hello, have been diagnosed for a long time now, 2008. I was forced to give up work due to how bad things got symptoms wise and am struggling day to day in which leads to a very low mood and lack of motivation. I don’t really have anyone near me and yes, local groups are available, I’m just struggling with doing that. I did, yet, something happened, which led me to walking away. I think I just need guidance on how to fill my days especially on the days I just want to do nothing. I just feel sad and somewhat lost, so I thought I would reach out. Any advice will be welcomed and I am here to support also. 
Thank you for taking the time to read this through and I hope your day is going well. 

Share this post

Link to post

Aw, @honey2674 , don't feel alone. MS is an invisible condition, we don't look sick. And we don't wear T-shirts to announce our condition to the world. On this basis, your next door neighbour could have the condition and you wouldn't know!


You shouldn't discount the local groups. I made that mistake. I walked into our local group, saw wheelchairs and walking aids and thought, "I don't belong here!". You have to understand the nature of local groups. They meet weekdays, when anyone under pension age is expected to work. So, local groups are full of the older demographic.


These people are very senior age-wise, they are very old MS-wise. By this I mean that they haven't had the benefit of all the treatments introduced over the last couple of decades. Your prognosis is probably more favourable. So, don't be put off by the wheelchairs, etc., but look at the years of experience that they have to share.


The other thing I noticed was that these local groups are usually very happy places. I wish I'd persevered, but I steered clear for about 15 years. When I did return, I saw the group in a new light. I started going to the group twice a week, participating in Hyperbaric Oxygenation, Pilates and even yoga. I also allowed myself to be thrown out of a plane, to raise funds for the group!


So, don't be alone and sad. You need support and camaraderie.


Joining this forum is a good start. It allows you to interact with others, whilst retaining anonymity. Regrettably, this Forum is eerily quiet these days. Just a handful of people still participate. It seems the latest generation of social media is more attractive. 


We all struggle in our own way, @honey2674 , but we all hold each other up too. We might find life somewhat restrictive, but we need to find ourselves a purpose. Your offer to also provide support here is a good start.


Take care and stay safe.



  • Like 1

John aka Stumbler (as I do fall over!)

Illegitimi non carborundum


"Life is not a journey to the grave with the intention of arriving safely in a pretty and well-preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming... "Wow! What a ride!"

Share this post

Link to post

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Similar Topics

    • Need support

      Hi I'm Ange and I'm 40 years old I've been suffering with chronic pins needles and numbness down my left side for almost a year I've also had very bad bouts of vertigo and balance issues along with a tremor of left arm and lately my left leg has been giving way, I've also had a bout of losing bladder control .... I'm under care of neurologist who has said my MRI showed white matter lessons but our inconclusive and I'm awaiting lumbar puncture and evoked potential test, I'm off work due to the balance problems, please has any one else been going threw this or can you tell me if you think this is MS I'm in limbo at min and have no other help from health care professionals, just a ton of meds from my GP to try mask my symptom,any advice would be greatly appreciated as I feel like a total nag.

      in General Discussion about MS

    • Help with acronyms on Ms news site please!

      I regularly read the ms news site . I don't expect to understand the really technical articles on cell structures etc, but I am capable of understanding most of the general articles. The big problem is that so many acronyms are used that I have no idea what is going on. Is there a list somewhere to help people reading these articles? For example a lot of interesting questions are being posed by Team G ,who are they? What does the G stand for? I am convinced there is a lot of obvious stuff being missed in MS research and I want to keep up and to see what the scientists are doing. Can any one help me and all the other readers who give up in frustration.?

      in General Discussion about MS

    • how do you support a partner?

      good evening all!   i just have to ask as I'm sure a few of you have been through this and a convo made me think!?   how do you also support the significant other when going through the weirdest problem which you can't explain???   Regards as always,   M

      in General Discussion about MS

    • support advice and whatnot for partners

      Hello all hope today finds you well? I'm looking for help for my partner. I have p.p.m.s and its pretty bad at times. My partner finds this so hard to deal with, and I feel for him. I have days I can't walk and he feels useless. So my question is this.. do any of you have advice or know where he can get advice!? Also I have shown him ms fact sites and they just scare him. Lol he worries a lot and I get that. So I want some advice more on emotional support as opposed to factual based support if that makes sense. I put myself in his shoes and am thankful I suffer and not watch someone I love suffer. It must be hard for them too. Thanks in advance Luci xx

      in General Discussion about MS

    • South Coast Support and Care

      This is for those of you out there that may live somewhere on the south coast, particularly in the Worthing to Brighton area. I am trying to get a feel for the quality of the support available for us MSer's. The medical support and any other general support. I may be in a position that could eventually entail a move towards the the south coast and it would be helpful to get any opinions. Unfortunately it is something I have to consider these days. We are not too badly off here in the Peterborough area as far as that sort of thing goes, so it would be good to know what I might be letting myself in for.   I am sure I will get chance to find out myself, but any useful nuggets would be most welcome   Paul

      in General Discussion about MS

About Us

Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.

If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.

The atmosphere is friendly whilst being compassionate, supportive and caring. Members also post about a variety of subjects not related to MS, as well as share jokes, talk about their hobbies, have fun, and more.

The MS People Forum is not responsible for advice or information supplied by members. We suggest you seek medical advice before trying anything.