Hi my name is Moray and I have had Ms for 10 years as I was misdiagnosed, and since being diagnosed three years ago with MS, I have been given many forms of drugs, none have helped since the side effects were awful, Copaxone injections, Painkillers, Antidepressant's. At the moment I am taking nothing as the doctors don't seem to know how to help anymore. I am disabled and rely on 24 hour care and in constant pain and very depressed. I rely on my partner for everything including help on the computer as my hands and arms are numb and painful, #I even find it difficult to use my mobile.
I don't know where to turn anymore and am so depressed and in pain, Can anybody help or advise.
I am a very positive person and have fought cancer but this has me beaten.
Blessings
Moray
Hi all
I get a lot of pain with my ms, have tried many drugs - gabapentin, amitriptyline, pregablin, duloxitine etc and nothing has helped. Finally convinced my neuro to refer me to a pain specialist back in September, and have an appointment in August.
Ive just received my copy of the referal letter and in it he suggests i may be a good candidate for a dorsal coloumn stimulator. Does anyone have any idea what this is? Im a bit scared to google it!
Any input on this would be appreciated, its freaked me out a bit!
Thank you
Laura x
Hi,
I suffer with extreme pain in my legs and sometimes my arms and hands but it's very very bad in my legs..I have been prescribed Gabapentin which makes me terribly short of breath so have given up on that..the other option which I have not tried yet is Pregabalin..I'm a bit scared to try it to be honest after bad effect of Gabapentin..can anyone suggest anything else that they've found works well?
Many thanks
Fran
Hi all
I started pregabilin last Thursday and my arm pain is still the same , I'm really tired out as cannot sleep.
I'm really worried as I have had breast cancer and worried it has come back, however doctor sent me for shoulder ex ray a few weeks age and said no cancer in shoulder bone . I don't know what to do next.
Has anyone else had this drug and how long did it take to work ? Xx😟
I wanted to ask if there is any way at all cannabis can be used where you don't have to smoke it (yuk) or suffer from paranoia........forget the spray, our surgery like to work 'within government guide lines', but they don't seem to get the fact that they are only blasted guide lines!
Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.
If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.
The atmosphere is friendly whilst being compassionate, supportive and caring. Members also post about a variety of subjects not related to MS, as well as share jokes, talk about their hobbies, have fun, and more.
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