I've had previous episodes of Optic Neuritis and loss of colour vision, both went back to normal eventually. But I've now had double vision for the past 17 months and have had to use a prism on my glasses to enable me to get around and continue driving. The eye clinic have been great but they seemed to think that the problem would have cleared up after a few months... this hasn't happened and because it isn't stable, they are reluctant to recommend I get the prism incorporated into my glasses in case it changes again.
Has anyone else experienced this problem and if so, how long did it last/or is it a permanent issue I just have to get used to?
I read in the current MS Matters letters section a complaint from a Blue Badge holder a complaint about the use of Blue Badges.
The gist of the complaint was that the lady thought that Blue Badges were only for wheelchair users and that other users are not entitled to use them.
As a Blue Badge holder who is not wheelchair bound, I am surprised, and disappointed. I understand that it must be frustrating for wheelchair users not to be able to find a disabled parking bay when they need one, but no more frustrating than it is to find disabled bays full but ring used by non Badge holders.
Am I the only person who thinks that this attitude is unreasonable?
Hi all,
Just wondering if anyone has any experience of taking pregabalin and it causing blurry vision. I've had a bit of a rough time getting onto pregabalin, but am persevering ... I seem to have tolerated the stomach upsets now after taking a low dose of 50mg day and night for a month or so. I then upped this to 75mg twice a day and 2 weeks after this my vision went blurry for a couple of weeks. My eyes have all been checked and my pharmacist said she had seen this several times with pregabalin and if I gave it a couple of weeks it should get better ... and sure enough it has! I am now tolerating the 75mg twice a day dose.
Unfortunately, I don't think this is high enough and I still get pain in my legs and my nurse agrees that the dose is probably too low. I'm concerned about increasing the dose further in case the vision problems occur again as I am going through a busy spell where I can't really afford to be unable to drive or read. I was wondering if anyone had any experience of getting blurred vision with pregabalin, and if so, did it occur everytime the dose was increased or was it just a one off while the body adjusted to the drug?
Any experience others have with this would be appreciated.
Thanks
Steve
Just a warning really, if you dont get high rate mobility and you attempt to get a Blue Badge.
I did get a letter from my neuro supporting my BBadge. saying about my mobility and my significant problems.
well it was not good enough. I had to to and have an interview by video at the library to county council.
Well I wished I had not bothered, I had to wait an hour and a half as there were two people before me the computer, well it was so slow.
I think it needed a handle to wind it up. the picture of the interviewer was not great and the sound on this old telephone was poor, so probably everyone in the library could hear my problems.
Anyway bascally it was like a DLa mobility form except she kept going on about breathlessness and the way I walked.
I told her over again I was not breathless. I nearly lost it and threw the phone down.
Basically if I was a really overweight fatty that smoked 50 a day I would of walked it (excuse the pun)
I was so stressed I forgot to tell her about the fatigue and sudden weakness.
So I dont think I will get it, even though the neuro letter told them could only walk 20 - 30 yards with significant pain.
I know all councils are different, but do make your notes before you go, Unless your 30 stone and smoke 50 a day.
yes, I do know certain steroids can make people overweight, my Dad was one of these in his last 4 years of his life, He got nowt either
he never got out and did not know how to use the system.
That was also under a conservative government.
sorry I am sounding bitter. It was just a farce, I was going for renewal as well. I very rarely used the badge but there are times as we all know that I needed it or dont go out.
hi, i have only joined the forum today. My sister has MS, has for 7 years. She has been in denial for years, coped very well, still working, socialising etc,. but i have seen a change recently. Yesterday she told me that she has very blurred vision, and has had it for over a year without telling anybody. at times it can be very bad, virtual blindness.. she described it as feeling as though the sun is shining straight onto your eyes, just a huge bright light, and she an see outlines of people, or prominent features.. but she is still driving.. she is too scared to tell anybody, incase she loses her license, and then her job etc,.. ive looked up the prognosis of her symtptons, but can only find the optic neurosis?? which doesnt really describe her symptoms because she had had them for a long time/permanent.. and evryone seems to only suffer the blurred vision temporarily, so im lost.. does anyone else here suffer with symptoms similar to my sister.. she has never had any medication, she has been abandoned by the nhs since diagnosis.. theyve bascially told her there is no help, just management,, but ive heard that steroids can help the vision problems, and that some medication can slow down the deterioration of the disease.. can anyone help me?? im not sure what to do next!
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