One of the things that I am now having great trouble with is using my right hand, particular with reference to holding cutlery. So I was very disappointed last week when I had a visit from my occupational therapist. She had come around after a conversation I had, had with the MS Nurse.
What I needed was some technical advice on a different kind of spoon theory, if you like. Holding a knife,or spoon, for that matter, in that hand is proving problematic, a curled up hand with little grip is more than annoying. Anyway I just assumed that the person in question, would have some knowledge, even the possibly that the department might have demonstration examples of knifes and forks to try. Sadly this appears to be no longer the case and the conversation, revolved around my simply going to a commercial shop. Now I am not after the NHS supplying me with something, I just want to have good suggestions from knowledgable people. My own experience of going into disability shops is mixed and I really don't think you always get the best advice. The Red Cross here used to have just such a place, locally. This has now closed. It looks like I shall have to rely on the hit and miss approach, of ordering things on-line and finding out what is best. Anybody got any good ideas on the subject?
This is about Lupus, but can apply to MS or any other such condition just as well, and is about how to try to describe to someone how it feels to be disabled and not as healthy as they are.
The Spoon Theory:
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