I'm a newbie, so please excuse its a bit confusing for me. In the meantime does anyone know of or have a good private GP in London? Living in France, (where my lovely GP recently died), I do need a good GP in the UK. My docs are there. (No specialist will take meon here unless I go to Paris and London is easier.)
I didn't have good experiences with GP's there so any thoughts would help. Living in France means I have no access to the NHS.
I should add I have AMN or ALD, adrenoleukodystrophy, which is invariably diagnosed as MS in women, its seldom seen in women....very similar malady and I was initially diagnosed with PPMS in the early days.
Huge fatigue is a big issue. Pls note I have tried to move back to the UK but I'm priced out of the housing market and much else. Very worried about Brexit but I won't start on that one. (I have to buy much of my meds privately in the UK, France will no longer pay for the expensive stuff.)
Main issue here is looking for a private GP, someone caring and supportive, does anyone know of one??
Many thanks, Candace
Hi My name is Emma and I am 37. I have 3 children. I have been diagnosed with Fibro since 2004 and Ehlers Danlos since 2013. I have had severe symptoms, starting with double/cloudy vision since April 2014, progressing with pins and needles, numbness, bladder weakness, memory loss, falling over, and other things. getting worse, then going away and then coming back again worse.
I went to the eye emergency clinic in 2014, and was told I need to see a neurologist and they would write to the GP and ask for me to be referred. Long story short the old GP said they did not receive this and I eventually have become house bound due to the symptoms.
Before Xmas 2015 I got a copy of my medical records and there is a letter from the eye hospital to the GP asking for further investigations, I have changed GP hoping for a new start. I went there today which took a lot of effort, to be told it can take 4 weeks maybe more for medical records to come over, I have to go back next week for numerous blood tests, I now can be waiting weeks, with double vision, eye pain and the pins needles etc again.
I am looking to go the one of the hospital neurologists privately, then ask them to see meon their NHS clinic for tests/scans etc? Has anyone had experience of that?. I can afford the consultation, and maybe some tests, but I think the MRIs would be very expensive.
Or should i go to a opticians or a and e to ask to be referred, as its so hard to cope with these symptoms. Or is it only a GP that can refer to a neurologist?.
any help you can give me would be much appreciated,
Thank you Emma.
I have been taking Gabapentin for a little while now, not a big dose, only 600mg a day and it seems like I have had the beginnings of a cold for as long as I can remember. Sniffles, a feeling in the throat, the usual stuff you get before a cold, but it never seems to actually come.
It is always hard to tell what came first, the drug or the snotty nose, but I am fairly certain it was the drug. It is close anyway.
There is no real mention of it as a side effect but then again that is not always the most reliable guide.
Anyone else seem to have acquired a potential nearly cold since going onto Gabapentin?
any advice really dont know where to turn right now, Hubby has worked for the same company for 17 years, his job has recently changed and there has been several months of conspiracy to get him out, Instead of looking at what adjustments they could make they have been on a mission to prove he cant do the new job with nothing short of lies.
The company appears to have followed correct procedure but have lied and fabricated questions to get the answers they require, one of them being can he walk 3 miles. of course he cant but a motorised vehicle had already been discussed with his immediate manager.
Its all about the work hours changing and they sold this to him, his consultant and the works doctor as being working 4x12 hour shifts together when the actual hours are mainly 2 on 2 off with the most days together being 3 days and only 2 instances of this in a month! a HUGE difference!
Everyhting that could incriminate them is missing from the case management package,( but we do have copies of the majority of them) he had the final stage meeting last week and was given 12 weeks notice, dont actually know what reason it is because he has asked the union rep about going for unfair dismissial and according to him he hasnt been dismissed. According to the case management package he should have been told how to appeal at the meeting and he wasnt, and still dont know ( time is ticking away fro he 14 day deadline)
He has said all along that he doesnt want to take early retirement but will be forced into something we cant live on the pension let alone nothing! and being capable of doing a job with the employer that is bound to make adjustments and keep you is very different to getting another job!
Hes now been told to apply for IHR although it looks like this should have been done before the final stage meeting came about, I cant see how he can be trying to prove he should have IHR and prove he can work 12 hour shifts at the same time?
He was asked to sign a disclaimer at the meeting and offered his notice pay to be paid tax free, he refused they apparantly were quite shocked. From what I can see they wernt actually giving him anything as aits just a different way of paying notice pay.
I really think he has more than enough to take this for discrimination
I cant believe you can work for an employer and come out of it with nothing but the pension you have paid for and be forced to have no job because of a disability.
any help and advice, tired local disability place before he actually lost his job they gave him the phone number of a good laywer and havent been able to contact.
he has secondary progressive and in the last 5 months its made him worse than the last 5 years have MS nurse does say its stress, making him worse.
Having felt that it would be a benefit to have my role at work reviewed with regard to how my performance is rated and what is expected of me, taking into consideration my condition, I wondered if anybody who has gone through this process can share what the outcome was and what information they had to provide their employer with. I have been informed that this will be a formal process invlolving H.R and Occupational Health. My G.P and Possibly Healthcare specialist will be contacted. I would love if someone could share any details of their experience of this.
Thanks guys x
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