I haven't been diagnosed with MS, recently diagnosed with ME but I like all of you here so I've stayed :-)
Anyway, I have a dreaded work night out tonight. I say dreaded because it's Friday and by now I can just about function. However, having pulled out of various nights out using different excuses, I decided if I went on this one I could get out of a few more to come!
I am so tired and I know I have been out when feeling like this once before and spent the next few weeks going through a really bad patch of tiredness and pain and I got very down.
Anyway, I know I will need to really take it easy after tonight and I am already prepared to maybe take Monday off work so I can recover quicker but does anyone have any tips on how to get through the evening without feeling like talking takes too much effort and you just want to curl up in a ball and sleep?
I am going to try and grab a 20 minute nap when I get home but any tips for feeling a bit brighter?
(I haven't told work about my ME)
Thanks,
Katie
I returned to Bradford NHS (and their new MS specialist Neuro) this year, after having been at Halifax NHS as there were no appointments available for 9 months at Bradford 5 years ago. At my first appointment I said, when asked, that I had an open mind regarding treatment, and I was told that I would be referred to Leeds NHS. Sure anough a month later an appointment letter landed on the mat, and, as it is next Wednesday at Seacroft Hospital, my busy mind has been wondering. As usual, I needed to know as much as I could about it, and it sounds like a great hospital, but can I find any information in the public arena, apart from that is where the MS services are in Leeds, and one of my Facebook friends goes there?....nope, not a suasage
My doctor said the reason my blood tests are high , was most probably down to my UTI that I had they want to check to make sure its cleared but he and the Neurolgist say Its unlikely I have something else other than MS. Kind of put my mind at ease. On Wednesday I will know if the blood tests are ok or not. Until then im going to relax over the week, chill on sofa tonight with my gorgeous daughter and watch Children in need with some Phish food icecream and im not a lover of icecream but im going to have some LOL. Hope everyone has a wonderful evening what ever you are doing
Hi everyone hope you are all well today.
As some of you may or may not know i had a neuro appointment on the 9th of november 2011 - which went very well indeed (I am not diagnosed of yet). The neuro was a lovely man and sais yes indeed something was wrong and he wanted me to have an mri scan done urgently. So onto radiology we went and informed them that an urgent mri scan is needed and i needed it before the 23rd november 2011 because that is the date of my results of the mri with the nice neuro. They informed us that they will either write of phone us for the appointment, but not to worry cos it WILL be before the 23rd. Yesturday i receivd my appointment for the mri and it said your appointment has been made for the 14thDECEMBER !!!! well as you can imagein i was livid and rang hubby to inform him of the appointment!!!
He proceeded to ring the radiolgy department to complain etc - the woman on the end of the phone was so rude and then said she couldnt understand why the neuro had asked for an urgent mri as she didnt think it was necessary - Like she was inthere with me - stupid u know what !!!!
anyway ( sorry this is long!!) - hubby was then told to ring our nearest hospital to see what they could do etc. He then rang my neuros pa and she was very very helpful indeed. But could only get the appointment for the 1st December. - But the radiology department was even more helpful and has got me an appointment for tonight at 7.30pm - i mite add tho we have to pay for this scan as a reduced cost tho - which my hubby was glad to pay. I have to have a full body mri so was informed this could take up to 2 hours to do, so im a liitle bit scared at the mo - but thought u all would like to know whats going on. I mite add my mobility has gone from bad to good to now being VERY Bad just can make it around the house now!!!
Thanks for listening and will keep u all updated very soon
Take care
Love vanessa xx
For those interested, the BBC is broadcasting a programme about CCSVI, MS and the liberation procedure tonight (Monday) on South West BBC at 7.30pm. Immediately afterwards it will be available on iplayer.
I hope to watch it and I imagine it will make interesting viewing.
Chris x
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