Bad night, weird dreams. Woke up completely locked-up in one position and for a few seconds couldn't feel my legs below my knees... that's a new one, never had that before!
Cog-fog - can't think of words, know what I want to say but struggling to find the right names for things. Thinking I've done things only to find I haven't and doing things I later don't remember.
Lost balance when getting dressed.
Someone please just put me out of my misery now.
Have i turned into somekind of monster..or what??
I am more than aware of the past few months, and yes i have been in a mess, but avoiding me,being embarrassed to talk to me, not making conversation will do nothing to help!
Or am i being selfish?
I am still me, warts and all, i won't break down or hurt you if you speak to me.
What is this "british" thing of ....if we don't mention it, it's not real!!
Do any of you find this in life or am i being over-sensitive?
Cazza x
I have a skin infection. Also they think I have an allergy or maybe photosensitivity. Will need to be referred to Dermatologist. My mouth is full of ulcers and cannot eat and my skin is very dry, so moisturising every hour. I am on a weeks worth of steroids prednisonen and steroid cream , lots of creams and anithistamines. Other than everything is fine n dandy..lol, have to laugh or I cry. Hope you are all feeling better than I xxxxxxxxxxxxx
Hi all. i got a letter today imforming me that someone from dla is visiting me for a medical. it is a doctor. i applied for dla last october and a decision hasnt been made yet. i did ring them last week to ask about my claim. they informed me that my consultant hasnt written back to them and it has been forwarded onto the medical team so i guess this visit is the result of that.
Has anyone had this medical by dla and what happens in the medical. i hope someone can give me an insight of what will happen during the medical. they are visiting meon the 1st feb
thanks
vanessa xx
Well had my second visit with Neuro.I feltit was not a good one. She had another person sat there with her.I think I found it unconfortable. I felt awful.I could not say what I wanted to say and I was struggling which she could tell as twice she asked me if I was Okay. I'm like no im not.I am Fatigued. She said she will see in a years time and if I have relapse during that time then She will see me. My baclofen has been increased to 10 mg so I will be taking 4 tablets in the evening. If they dont work then I will be put on something else they use for epilepsy but cant remember what she said.
Also told me to do some light exercises at home, so I have the ms dvd will crack on with that and now I have the yellow disabled card I can start swimming.
To carry on seeing the ms nurse.
I am being referred to Urology and OT, as my doctor referred me as he says I have stress continence and probably have medication for that.
The choking I get is apparently not an ms symptoms as it do not interfere with swallowing. So will be having that checked another referral to the hospital.
I should of took my sister or mum with me rather than my nan, lol. As my sister would speak up where as me and my nan dont! I am so annoyed with myself for feeling so crappy and not making my neuro visit like I wanted it to.
Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.
If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.
The atmosphere is friendly whilst being compassionate, supportive and caring. Members also post about a variety of subjects not related to MS, as well as share jokes, talk about their hobbies, have fun, and more.
The MS People Forum is not responsible for advice or information supplied by members. We suggest you seek medical advice before trying anything.